ArticleResearch involvement and engagement2019
Supported and valued? A survey of early career researchers' experiences and perceptions of youth and adult involvement in mental health, self-harm and suicide research.
Article in Research involvement and engagement, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- An umbrella review of reviews on challenges to meaningful adolescent involvement in health research.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Youth engagement in mental health research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- 'It reshaped how I will do research': A qualitative exploration of team members' experiences with youth and family engagement in a randomized controlled trial.Health expectations : an international journal of public participation in health care and health policy · 2021Trial
- "To make a positive difference": diverse youth perspectives on getting involved in mental health research.Research involvement and engagement · 2026Article
- Usability testing of two co-designed discharge communication tools for use in pediatric emergency departments: findings from the EDUCATE study.BMC pediatrics · 2026Article
- Experiences and challenges of early career researcher investigating youth suicidality in Nepal.Discover mental health · 2026Review
- "Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2025Article
- Amplifying the Voices of Youth for Equity in Wellness and Technology Research: Reflections on the Midwest Youth Wellness Initiative on Technology (MYWIT) Youth Advisory Board.JMIR public health and surveillance · 2025Article
- 'Wisdom Is Knowledge Plus Experience': Qualitative Study of Lived Experience and Researcher Perspectives on Suicide Research Co-Production.International journal of mental health nursing · 2025Article
- Practitioner Review: Treatments for young people who self-harm - challenges and recommendations for research and clinical practice.Journal of child psychology and psychiatry, and allied disciplines · 2025Review
- Content, implementation, and evaluation of capacity-strengthening initiatives for public and patient involvement in mental health research: a scoping review protocol informed by implementation science.HRB open research · 2025Article
- Behind the data: Reflections from conducting school-based suicide prevention research with young people in the United Kingdom.PLOS mental health · 2025Article
- How to address the barriers to meaningful adolescent involvement in health research: A qualitative study.Journal of research on adolescence : the official journal of the Society for Research on Adolescence · 2024Article
- Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives.Research involvement and engagement · 2024Review
- Involving Young People With Lived and Living Experience of Suicide in Suicide Research.Crisis · 2024Article
- A rapid review of guidelines on the involvement of adolescents in health research.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Youth partnership in suicide prevention research: moving beyond the safety discourse.BMJ open · 2023Review
- Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience: A pilot evaluation study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Active involvement of people with lived experience of suicide in suicide research: a Delphi consensus study.BMC psychiatry · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient and public involvement (PPI) in mental health research, including self-harm and suicide research, is desirable (as with other health topics) but may involve specific challenges given the perceived sensitivity of the topic. This is particularly so when involving young people. We explore the experiences and perceptions of Early Career Researchers (ECRs) undertaking youth and adult involvement work in mental health, self-harm and/or suicide research. We consider current practice, barriers and facilitators.
methodsAn online survey of a convenience sample of ECRs (
resultsYouth and adult involvement work were valued to a similar extent, though institutions were reported to value youth involvement to a lesser extent. Researchers' knowledge, confidence and support ratings were comparable for youth and adult involvement. The involvement methods used with young people and adults were also similar, with analysing data being the least popular method used and developing resources (e.g. information sheets) being the most popular method used. Less than a third of participants reported that funding was available for their research involvement activities. Barriers to involvement in research on mental health, self-harm and suicide were: ethical issues and perceived risk; real costs (in terms of money/time) versus perceived value; and the challenge of recruiting people. Facilitators to involvement work were: expert examples, expertise and guidelines; and investment in involvement work.
conclusionsECRs in the fields of mental health, self-harm and suicide are engaged in youth and adult involvement work. They value (find worthwhile) youth and adult involvement work to a similarly high extent, but feel their institutions may regard youth involvement slightly less highly than adult involvement. ECRs rate themselves as feeling similarly knowledgeable, confident and supported when doing involvement activities with both age groups. Nonetheless, significant barriers to involvement work on these topics are reported and are generally issues that need to be tackled at an institutional level (ethical/governance issues and lack of funding).
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.