Evidence map›Paper›PMID 31163259›Full record

Trial reportJournal of pain and symptom management2019

Usability of PCforMe in Patients With Advanced Cancer Referred to Outpatient Palliative Care: Results of a Randomized, Active-Controlled Pilot Trial.

Arif H Kamal, Steven Wolf, Jonathan M Nicolla, Fred Friedman, Mengdi Xuan, Antonia V Bennett, Greg Samsa

Open access · greenAbstract readRandomized Controlled Trial
In one paragraph

Trial report in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
2.4field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 23 citations in OpenAlex.

  1. Trial
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  5. Review
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  8. Usability and Feasibility of an in-Home Remote Exam Device in Children with Medical Complexity During the COVID-19 Pandemic.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2024
    Article
  9. Review
  10. Article
  11. Article
  12. Article
  13. Aliviado Mobile App for Hospice Providers: A Usability Study.Journal of pain and symptom management · 2022
    Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Arif H KamalDuke Cancer Institute, Durham, North Carolina, USA; Duke Fuqua School of Business, Durham, North Carolina, USA; Department of Population Health Sciences, Duke University, Durham, North Carolina, USA. Electronic address: arif.kamal@duke.edu.
Steven WolfDepartment of Biostatistics and Bioinformatics, Duke University, Durham, North Carolina, USA.
Jonathan M NicollaDuke Cancer Institute, Durham, North Carolina, USA.
Fred FriedmanDuke Cancer Institute, Durham, North Carolina, USA.
Mengdi XuanDepartment of Biostatistics and Bioinformatics, Duke University, Durham, North Carolina, USA.
Antonia V BennettDepartment of Health Policy and Management, University of North Carolina, Chapel Hill, North Carolina, USA.
Greg SamsaDepartment of Biostatistics and Bioinformatics, Duke University, Durham, North Carolina, USA.
Duke University · USDuke Cancer InstituteUniversity of North Carolina at Chapel Hill · US

Funding

Women's Cancer Research ProgramP30CA014236 · NCI · DUKE UNIVERSITY · PI JOHN N. NORTON · 1985 to 2026
$174.8M
Which palliative care quality measures improve patient-centered outcomes?K08HS023681 · AHRQ · DUKE UNIVERSITY · PI KAMAL, ARIF · 2015 to 2019
$733k
AHRQ HHS K08 HS023681AHRQ HHS K08 HS023681-04NCI NIH HHS P30 CA014236
6 · The paper itself

Abstract

contextLow utilization of palliative care services warrant testing of new solutions to educate and engage patients around the benefits of palliative care.

objectivesWe sought out to develop and test a novel, mobile health solution to prepare patients for an upcoming outpatient palliative care appointment.

methodsAfter developing a web-based tool called PCforMe (Palliative Care for Me), we conducted a randomized, active-controlled, trial of PCforMe. The primary outcome was the score on the System Usability Scale (SUS). Secondary outcomes were patient self-efficacy and change in knowledge. We compared PCforMe to three common online resources for patients seeking information about palliative care.

resultsA total of 80 patients were randomized. There were no significant demographic differences. Mean SUS score for PCforMe was 78.2, significantly above the normative average SUS score of 68 (P-value < 0.0001). Mean change in Perceived Efficacy in Patient-Physician Interactions score was -2.2 for PCforMe and -1.7 for control group (P-value = 0.72). Preparedness for an upcoming palliative care visit increased 50% in the intervention group and 13.3% in the control group. Difference in the number of patients with improved knowledge regarding palliative care approached significance (P = 0.06). Lastly, we found that the no-show rate was lower during Q1 2017 (during trial) and Q1 2016 (before trial), at 11.7% and 21%, respectively (P < 0.05). Comparing the full calendar year (CY) 2016 with 2017, we did not find a statistical difference (CY 2016 of 18.8% and 15% in CY 2017; P = 0.22).

conclusionPCforMe is a usable mobile health tool to prepare patients for an upcoming palliative care appointment. Further research is needed to test effectiveness.

Indexed as

OutpatientsPalliative CarePatient Acceptance of Health CareTelemedicineAdolescentAdultAgedAged, 80 and overFemaleHumansMaleMiddle AgedPilot ProjectsYoung AdultMobile healthno-show ratepalliative care clinicpatient engagement

Identifiers

PMID31163259
PMCPMC10230646
OpenAlexW2947544538

What OpenQuestion holds

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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.