ArticleJournal of the American Medical Informatics Association : JAMIA2019
A digital health research platform for community engagement, recruitment, and retention of sexual and gender minority adults in a national longitudinal cohort study--The PRIDE Study.
Article in Journal of the American Medical Informatics Association : JAMIA, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 96 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
96 citing papers in PubMed.
- Anti-industry beliefs and attitudes mediate the effect of culturally tailored anti-smoking messages on quit intentions among sexual minority women.Scientific reports · 2024Trial
- Culturally Tailored Anti-Smoking Messages: A Randomized Trial With U.S. Sexual Minority Young Women.American journal of preventive medicine · 2024Trial
- Posttraumatic stress symptom reduction after gender-affirming medical interventions: A longitudinal study.Journal of traumatic stress · 2026Article
- Cardiovascular Health Across Gender Identities: Life's Essential 8 in the PRIDE Study.Journal of the American Heart Association · 2026Article
- Place-based disorder, social cohesion, and physical and mental health outcomes of LGBTQIA+ adults in the United States.AJE advances : research in epidemiology · 2026Article
- Association of employment quality with depression among sexual and gender minority adults: a retrospective cohort study.Lancet regional health. Americas · 2026Article
- Age-Related Trends in Eating-Pathology Symptoms Among Sexual Minority Adults.European eating disorders review : the journal of the Eating Disorders Association · 2026Article
- Social determinants of health as risk and protective factors for health care access among sexual and gender minority parents.Scientific reports · 2026Article
- Implementing and retaining a large-scale technology-mediated cohort to study HIV incidence and PrEP uptake among vulnerable cisgender men as well as transgender individuals in the United States, the Together 5000 cohort.American journal of epidemiology · 2026Article
- Preferred Panethnic Terms Among Latina/o and Hispanic Sexual and Gender Minority People.JAMA network open · 2026Article
- LGBTQIA+ People's Perspectives on LGBTQIA+-Targeted State Policies and Mental Health: A Qualitative Study.JAMA network open · 2026Article
- Parkinson's research with inclusion, diversity and equity (PRIDE): examining Parkinson's disease symptoms among LGBTQ+ and non-LGBTQ+ adults.Frontiers in public health · 2026Article
- Associations of employment gain, employment loss and prolonged unemployment with depressive symptoms over time among sexual and gender minority adults in the USA: a retrospective cohort study.BMJ public health · 2026Article
- Validation of the Brief Assessment of Stress and Eating (BASE) in cisgender gay men and lesbian women.Journal of eating disorders · 2025Article
- Minority stress and eating pathology among sexual minority undergraduate women.Eating behaviors · 2025Article
- Social determinants of health as risk and protective factors for health care access among sexual and gender minority parents.Research square · 2025Article
- Feasibility of a Community-Developed Survey Measuring Experiences of Pregnancy Care for LGBTQ2S+ Families.Birth (Berkeley, Calif.) · 2025Article
- Factor Structure, Internal Consistency, and Measurement Invariance of the Eating Pathology Symptoms Inventory (EPSI) in Transgender and Gender-Diverse Adults.The International journal of eating disorders · 2025Article
- Investigating the Interplay Between Having Cystic Fibrosis and Being a Member of the LGBTQIA+ Community: Protocol for the PRIDE CF Study.Pediatric pulmonology · 2025Article
- US State Policies and Mental Health Symptoms Among Sexual and Gender Minority Adults.JAMA network open · 2025Article
36 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
objectiveSexual and gender minority (SGM) people are underrepresented in research. We sought to create a digital research platform to engage, recruit, and retain SGM people in a national, longitudinal, dynamic, cohort study (The PRIDE Study) of SGM health. MATERIALS AND
methodsWe partnered with design and development firms and engaged SGM community members to build a secure, cloud-based, containerized, microservices-based, feature-rich, research platform. We created PRIDEnet, a national network of individuals and organizations that actively engaged SGM communities in all stages of health research. The PRIDE Study participants were recruited via in-person outreach, communications to PRIDEnet constituents, social media advertising, and word-of-mouth. Participants completed surveys to report demographic as well as physical, mental, and social health data.
resultsWe built a secure digital research platform with engaging functionality that engaged SGM people and recruited and retained 13 731 diverse individuals in 2 years. A sizeable sample of 3813 gender minority people (32.8% of cohort) were recruited despite representing only approximately 0.6% of the population. Participants engaged with the platform and completed comprehensive annual surveys- including questions about sensitive and stigmatizing topics- to create a data resource and join a cohort for ongoing SGM health research. DISCUSSION: With an appealing digital platform, recruitment and engagement in online-only longitudinal cohort studies are possible. Participant engagement with meaningful, bidirectional relationships creates stakeholders and enables study cocreation. Research about effective tactics to engage, recruit, and maintain active participation from all communities is needed.
conclusionThis digital research platform successfully recruited and engaged diverse SGM participants in The PRIDE Study. A similar approach may be successful in partnership with other underrepresented and vulnerable populations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.