ArticleOphthalmology and therapy2019
Evaluating Patient Experiences in Dry Eye Disease Through Social Media Listening Research.
Article in Ophthalmology and therapy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
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Who cites it
34 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Artificial intelligence and patient reported outcomes in ophthalmology.Journal of patient-reported outcomes · 2026Pooled it
- Matching-adjusted indirect comparison of acoltremon ophthalmic solution 0.003% and cyclosporine 0.05% ophthalmic emulsion for increased tear production in patients with dry eye disease.Journal of comparative effectiveness research · 2026Article
- Extracting Quality of Life Information of Patients Diagnosed With Breast Cancer From Health Care Online Forum Posts: Data Feasibility Study.JMIR cancer · 2026Article
- Ethical Considerations for the Use of Social Media in the Human Subjects Research Setting.Journal of medical Internet research · 2025Article
- Psychometric validation of the Chronic Ocular Pain Questionnaire (COP-Q).Journal of patient-reported outcomes · 2025Observational
- Best practices for the collection and analysis of patient experience data from social media for patient-focused drug development.Frontiers in medicine · 2025Review
- Findings from a social media listening study on Chinese patients with Alzheimer's disease: a content analysis.General psychiatry · 2025Article
- Cross-Platform Analysis of Mammography Narratives: A Comparative Study on Social Media Engagement.Journal of patient-centered research and reviews · 2025Article
- Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States.Rheumatology and therapy · 2024Article
- Patient perceptions of disease burden and treatment of myasthenia gravis based on sentiment analysis of digital conversations.Scientific reports · 2024Article
- Patient Experiences and Insights on Chronic Ocular Pain: Social Media Listening Study.JMIR formative research · 2024Article
- Qualitative Research to Understand the Patient Experience and Evaluate Content Validity of the Chronic Ocular Pain Questionnaire (COP-Q).Ophthalmology and therapy · 2024Article
- Patient Perception and Self-Reported Outcomes with Presbyopia-Correcting Intraocular Lenses (PCIOLs): A Social Media Listening Study.Ophthalmology and therapy · 2024Article
- Patient listening on social media for patient-focused drug development: a synthesis of considerations from patients, industry and regulators.Frontiers in medicine · 2024Article
- Artificial intelligence-enabled social media listening to inform early patient-focused drug development: perspectives on approaches and strategies.Frontiers in digital health · 2024Article
- One size fits all: Enhanced zero-shot text classification for patient listening on social media.Frontiers in artificial intelligence · 2024Article
- Evaluation of the Needs and Experiences of Patients with Hypertriglyceridemia: Social Media Listening Infosurveillance Study.Journal of medical Internet research · 2023Article
- Patient Journey Toward a Diagnosis of Light Chain Amyloidosis in a National Sample: Cross-Sectional Web-Based Study.JMIR formative research · 2023Article
- Using social media research in health technology assessment: stakeholder perspectives and scoping review.International journal of technology assessment in health care · 2023Article
- Patient Experience of Sjögren's Disease and its Multifaceted Impact on Patients' Lives.Rheumatology and therapy · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionSocial media listening (SML) is an approach to assess patient experience in different indications. This is the first study to report the results of using SML to understand patients' experiences of living with dry eye disease (DED).
methodsPublicly available, English-language social media content between December 2016 and August 2017 was searched employing pre-defined criteria using Social Studio
resultsIn all, 2279 possible patient records were identified following NLP, which were filtered for relevance to disease area by analysts, resulting in a total of 1192 posts which formed the basis of this study. Of these, 77% (n = 915) were from the USA. Symptoms, causes, diagnosis and treatments were the most commonly discussed themes. Most common symptoms mentioned were eye dryness (138/901), pain (114/901) and blurry vision (110/901). Pharmaceutical drugs (prescription and over-the-counter; 55%; 764/1393), followed by medical devices (20%; 280/1393), were mentioned as major options for managing symptoms. Of the pharmaceutical drugs, eye drops (33%; 158/476) and artificial tears (10%; 49/476) were the most common over-the-counter options reported, and Restasis
conclusionsInsights revealed using SML strengthen our understanding about patient experiences and their unmet needs in DED. This study illustrates that an SML approach contributed effectively in generating patient insights, which can be utilised to inform early drug development process, market access strategies and stakeholder discussions.
fundingNovartis Pharma AG, Basel, Switzerland. Plain language summary available for this article.
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