Evidence map›Paper›PMID 31159829›Full record

ArticleBMC public health2019

How to increase public participation in advance care planning: findings from a World Café to elicit community group perspectives.

Patricia D Biondo, Seema King, Barinder Minhas, Konrad Fassbender, Jessica E Simon, Advance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO)

Open access · goldAbstract read
In one paragraph

Article in BMC public health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed, 1 pooled it
5.5field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 1 synthesis or guideline pooled it, 47 citations in OpenAlex.

  1. Pooled it
  2. Trial
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  12. Advance Care Planning for Spanish-Language Speakers: Patient, Family, and Interpreter Perspectives.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023
    Article
  13. The care planning umbrella: The evolution of advance care planning.Journal of the American Geriatrics Society · 2023
    Article
  14. Article
  15. Keeping the Agenda Current: Evolution of Australian Lived Experience Mental Health Research Priorities.International journal of environmental research and public health · 2022
    Article
  16. Article
  17. Part of the solution: A survey of community organisation perspectives on barriers and facilitating actions to Advance Care Planning in British Columbia, Canada.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  18. Virtual World Café Method for Identifying Mental Health Research Priorities: Methodological Case Study.International journal of environmental research and public health · 2021
    Article
  19. 'Palliative medicine · 2021
    Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Patricia D BiondoAdvance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO), University of Calgary, Calgary, Alberta, Canada.
Seema KingAdvance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO), University of Calgary, Calgary, Alberta, Canada.
Barinder MinhasAdvance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO), University of Calgary, Calgary, Alberta, Canada.
Konrad FassbenderAdvance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO), University of Calgary, Calgary, Alberta, Canada.
Jessica E SimonAdvance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO), University of Calgary, Calgary, Alberta, Canada. jessica.simon@ahs.ca.
Advance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO)
University of Calgary · CA

Funding

Alberta Innovates - Health Solutions 201201157Alberta Innovates - Health Solutions 201500790
6 · The paper itself

Abstract

backgroundIn 2014, Alberta, Canada broke new ground in having the first provincial healthcare policy and procedure for advance care planning (ACP), the process of communicating and documenting a person's future healthcare preferences. However, to date public participation and awareness of ACP remains limited. The aim of this initiative was to elicit community group perspectives on how to help people learn about and participate in ACP.

methodsTargeted invitations were sent to over 300 community groups in Alberta (e.g. health/disease, seniors/retirement, social/service, legal, faith-based, funeral planning, financial, and others). Sixty-seven participants from 47 community groups attended a "World Café". Participants moved between tables at fixed time intervals, and in small groups discussed three separate ACP-related questions. Written comments were captured by participants and facilitators. Each comment was coded according to Michie et al.'s Theoretical Domains Framework, and mapped to the Capability, Opportunity and Motivation behavior change system (COM-B) in order to identify candidate intervention strategies.

resultsOf 800 written comments, 76% mapped to the Opportunity: Physical COM-B component of behavior, reflecting a need for access to ACP resources. The most common intervention functions identified pertained to Education, Environmental Restructuring, Training, and Enablement. We synthesized the intervention functions and qualitative comments into eight recommendations for engaging people in ACP. These pertain to access to informational resources, group education and facilitation, health system processes, use of stories, marketing, integration into life events, inclusion of business partners, and harmonization of terminology.

conclusionsThere was broad support for the role of community groups in promoting ACP. Eight recommendations for engaging the public in ACP were generated and have been shared with stakeholders.

Indexed as

Advance Care PlanningCommunity ParticipationAlbertaAwarenessFemaleHealth Services Needs and DemandHumansMaleAdvance care planningCommunity engagementCommunity groupsPublicWorld Café

Identifiers

PMID31159829
PMCPMC6547442
OpenAlexW2948045949

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.