Evidence map›Paper›PMID 31156158›Full record

SynthesisJournal of Alzheimer's disease : JAD2019

Active Involvement of People with Dementia: A Systematic Review of Studies Developing Supportive Technologies.

Sandra Suijkerbuijk, Henk Herman Nap, Lotte Cornelisse, Wijnand A IJsselsteijn, Yvonne A W de Kort, Mirella M N Minkman

Open access · hybridAbstract readSystematic Review
In one paragraph

Synthesis in Journal of Alzheimer's disease : JAD, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
50citing papers in PubMed, 2 pooled it
36.4field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

50 citing papers in PubMed, 2 syntheses or guidelines pooled it, 114 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Cognitive Reablement Using Digital Voice Assistants for People Living With Dementia or Mild Cognitive Impairment: A Co-Design Study.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  5. Article
  6. Article
  7. Rationale and design of a multidomain lifestyle program for mild cognitive impairment.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026
    Article
  8. Article
  9. Review
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Review
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Sandra SuijkerbuijkVilans, Centre of expertise Long-term care, Utrecht, The Netherlands.
Henk Herman NapVilans, Centre of expertise Long-term care, Utrecht, The Netherlands.
Lotte CornelisseVilans, Centre of expertise Long-term care, Utrecht, The Netherlands.
Wijnand A IJsselsteijnHuman Technology Interaction, University of Technology, Eindhoven, The Netherlands.
Yvonne A W de KortHuman Technology Interaction, University of Technology, Eindhoven, The Netherlands.
Mirella M N MinkmanVilans, Centre of expertise Long-term care, Utrecht, The Netherlands.
Eindhoven University of Technology · NLTIAS School for Business and Society · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Although there are promising benefits of supportive technology in dementia care, use of these technologies is still limited. It is challenging for researchers and developers in this field to actively involve people with dementia in development. This review updates and builds on existing knowledge by including a contemporary and relevant perspective. This perspective was gained by including search words and search databases from the field of Human Computer Interaction (HCI) and Design, as these fields were expected to supply novel insights in the complex task of actively involving people with dementia in developing supportive technologies. A total of 49 out of 3456 studies were included which describe the development of a great variety of technologies. Often people with dementia were involved in the generative or evaluative phase of the development. Interviews and observations were most commonly used methods. In seven articles the people with dementia were co-designers. This literature review reflects that people with dementia can influence the development of technology in regards to content, design, and even the initial idea, although the impact on how they experience their own involvement remains largely unknown. There is a lack of specific knowledge on appropriate methods and materials for active involvement of people with dementia in supportive technology development, even when including articles from the field of HCI and Design. Future research is needed to further appreciate and improve the desired role of people with dementia in meaningful technology development.

Indexed as

Patient ParticipationSelf-Help DevicesDementiaHumansIndustrial DevelopmentCo-designdementiapatient participationsupportive technology

Identifiers

PMID31156158
PMCPMC6597993
OpenAlexW2947188997

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.