ArticleCritical care nurse2019
Family Surrogate Decision-making in Chronic Critical Illness: A Qualitative Analysis.
Article in Critical care nurse, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 22 citations in OpenAlex.
- Phenomenological study on decision fatigue among surrogate decision-makers for ICU patients.Medicine · 2025Article
- Investigating stress, social support, and decisional conflict dynamics in surrogates of intensive care unit patients with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- When chronic critical illness is a family affair: A multi-perspective qualitative study of family involvement in long-term care.Chronic illness · 2023Article
- Navigating disagreement and conflict in the context of a brain-based definition of death.Canadian journal of anaesthesia = Journal canadien d'anesthesie · 2023Review
- Surviving sepsis campaign: international guidelines for management of sepsis and septic shock 2021.Intensive care medicine · 2021Article
- Understanding of Health-related Decision-making Terminology Among Cancer Caregivers.Western journal of nursing research · 2021Article
- Health-related expectations of the chronically critically ill: a multi-perspective qualitative study.BMC palliative care · 2021Article
- Decision-Making Processes in Surrogates of Cancer Patients in a Taiwan Intensive Care Unit.International journal of environmental research and public health · 2020Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
backgroundCaring for an adult with chronic critical illness is a difficult undertaking. Family surrogates are tasked with decision-making on behalf of their loved one, particularly during acute-on-chronic illness episodes. Critical care nurses are well positioned and well qualified to facilitate this process.
objectivesTo explore family surrogate decision-making for people with chronic critical illness.
methodsIn this qualitative study, interviews were conducted with family surrogates (n = 7) as part of a larger descriptive, longitudinal study (N = 264). Content analyses were guided by Miles and colleagues' methods of data analysis.
resultsFamily surrogates serving as decision makers for a spouse or another adult loved one were mostly female. Although decision-making was often described as "frustrating," most surrogates reported that they were "comfortable" with this role. Major decision-making themes were "communication as key in decision-making," "impact of past experiences," and "difficulties and coping." Advice from family and friends, health care providers (such as nurses), and faith or spirituality were significant resources for coping with decision-making challenges.
conclusionsResults support recent recommendations of the National Academy of Medicine that endorsed shared decision-making. Data also support development of more effective team communication and decision support strategies, particularly addressing consistency and continuity. Critical care nurses can use their expertise to positively influence these outcomes.
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Registered trials
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