ArticleThe Journal of pediatrics2019
Attributable Delay of Discharge for Children with Long-Term Mechanical Ventilation.
Article in The Journal of pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Care of Infants and Children with Tracheostomies: An Official American Thoracic Society Clinical Practice Guideline.American journal of respiratory and critical care medicine · 2025Guideline
- Factors associated with liberation from home mechanical ventilation and tracheostomy decannulation in infants and children with severe bronchopulmonary dysplasia.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- LongVentKids: how long is too long?-are we speaking the same language?Translational pediatrics · 2025Article
- The Impact of COronaVIrus Disease of 2019 Pandemic on Home Health Nursing Availability in Pediatric Patients After Tracheostomy Placement.Pediatric pulmonology · 2025Article
- Quantifying Antibiotic Prescribing in Children With Tracheostomies.Pediatric pulmonology · 2025Article
- Care Beyond the Bedside: Creating Space for Families of Hospitalized Children with Medical Complexity.Children (Basel, Switzerland) · 2025Review
- Safe Enough: Subjective Determinations in Hospital Discharge for Patients With Medical Complexity.Pediatrics · 2025Article
- Effects of Family Caregiver-Nurse Communication on Family Management and Family Caregiver Uncertainty Regarding the Care of Children With Long-Term Ventilator Dependence.Journal of family nursing · 2025Article
- Understaffed Home Nursing and Wellbeing of Families of Children with Medical Complexity.Children (Basel, Switzerland) · 2025Article
- Impact of Systems of Care on Emotional Well-Being of Primary Family Caregivers of Children with Medical Complexity.Maternal and child health journal · 2025Article
- Review
- Magic Mothers: How Parents of Children with Invasive Mechanical Ventilation Can Make Health System Crises Disappear.Journal of developmental and physical disabilities · 2025Article
- Hospital to home transition of children with medical complexities in the Netherlands: current practice.European journal of pediatrics · 2025Observational
- Utilization of Training Dolls to Enhance Caregiver Education for Pediatric Tracheostomy Care.Respiratory care · 2023Article
- Paying Family Medical Caregivers for Children's Home Healthcare in Colorado: A Working Medicaid Model.The Journal of pediatrics · 2023Article
- Back Transfer of Infants with Tracheostomies: A Regional Center Experience.Journal of pediatric intensive care · 2023Article
- Avoidable Discharge Delays: Children Waiting in Hospitals Deserve More Attention.Hospital pediatrics · 2023Article
- Early childhood developmental skills of children with tracheostomies and ventilators recently discharged home.Pediatric pulmonology · 2023Article
- Length of Stay and Barriers to Discharge for Technology-Dependent Children During the COVID-19 Pandemic.Hospital pediatrics · 2023Article
- Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.Children (Basel, Switzerland) · 2022Article
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Authors and funding
5 authors.
Funding
Abstract
objectiveTo assess the reasons for discharge delays for children with long-term mechanical ventilation. STUDY
designCharts of children (0-18 years of age) with a new tracheostomy in the Pulmonary Habilitation Program at the Ann and Robert H. Lurie Children's Hospital of Chicago were retrospectively reviewed for demographic information, medical diagnoses, medical stability, discharge to home, reasons for discharge delay, and hours of staffed home nursing. All patients were discharged on mechanical ventilation. Discharge delay was defined as >10 days after medical stability. Hospital charges were analyzed and excess charges quantified beginning with the date of delay. Descriptive statistics and Pearson χ
resultsOf 72 patients, 55% were male with mean age 1.8 years (SD 3.8) at tracheostomy placement. The most common long-term mechanical ventilation indication was chronic lung disease (n = 47, 65%); 54% had discharge delays, the majority were primarily due to lack of home nursing (62%), followed by delay of caregiver training (18%), caregiver health and social issues (8%), and delay in a transitional care facility bed (8%). Of the 39 delayed patients, 10% ($13 217 889) of hospital charges occurred during excess days with a median of $186 061 (IQR $117 661-$386 905) per patient.
conclusionsOver one-half of children discharged to the community from a large inpatient pediatric long-term mechanical ventilation program had a nonmedical delay of discharge home, most commonly because of home nurse staffing. This case series provides further evidence that limited availability of home nursing impedes efficient discharge and prolongs hospitalizations.
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