ArticleEuropean journal of human genetics : EJHG2019
Attitudes of blood donors to their sample and data donation for biobanking.
Article in European journal of human genetics : EJHG, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- Blood donor biobank pipeline to collect genome-based samples for research.Scientific reports · 2026Article
- Health promotion for blood donors: A scoping review.Public health in practice (Oxford, England) · 2025Review
- Evaluating the Diagnostic Potential of Biomarker Panels in Breast Cancer and Prostate Adenocarcinoma.Health science reports · 2025Article
- Attitudes of blood and plasma donors towards biobanking for longitudinal health research.PloS one · 2025Article
- Equity in blood transfusion precision services.International journal for equity in health · 2024Article
- Blood donor biobank as a resource in personalised biomedical genetic research.European journal of human genetics : EJHG · 2024Article
- Genetic tests as the strongest motivator of cooperation between participants and biobanks-Findings from cross-sectional study.Frontiers in genetics · 2024Article
- Knowledge and perceptions of South African blood donors towards biobanking and stool donation.Southern African journal of infectious diseases · 2024Article
- Knowledge and perceptions of blood donors of the Western Cape Blood Services, South Africa, toward vaginal sample donation for biobanking.Frontiers in reproductive health · 2024Article
- Awareness, Attitudes and Willingness to Donate Biological Samples to a Biobank: A Survey of a Representative Sample of Polish Citizens.Healthcare (Basel, Switzerland) · 2023Article
- The influence of service quality and anticipated emotions on donor loyalty: an empirical analysis in blood centres in Spain.Health care management science · 2022Article
- Blood donor biobank and HLA imputation as a resource for HLA homozygous cells for therapeutic and research use.Stem cell research & therapy · 2022Article
- Social differentiation of the perception and human tissues donation for research purposes.Frontiers in genetics · 2022Article
- Demographic and prosocial intrapersonal characteristics of biobank participants and refusers: the findings of a survey in the Netherlands.European journal of human genetics : EJHG · 2021Article
- Motives of contributing personal data for health research: (non-)participation in a Dutch biobank.BMC medical ethics · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Modern biomedical and genetic studies require large study cohorts; blood donors have been suggested to represent an appropriate group for recruiting healthy cohorts. The Blood Service Biobank (BSB) in Finland was recently established to recruit blood donors willing to give broad biobank consent. The aim of the present study is to understand how the blood bank context influences views on donating samples and health data. We organised 61 interviews and 10 group discussions with current and potential blood donors. Using qualitative content analysis, we identified three discussion frameworks that summarise the results. We found that frequent blood donors associated the voluntary act of donation with caring for patients. The blood donation experience was considered to accommodate biobank participation, but also allowed critical observations on the integration of research data collection into blood donation. Research participants identified an important difference between the blood bank and biobank contexts. In the biobank context, the focus shifts from donating blood to patients into donating personal and genetic data for research use. Blood donors' anxiety over data use was balanced with their experience of the trustworthiness of the Blood Service. These experiences indicated that the new biobanking activity could be trusted to a familiar organisation. To build donors' trust, biobanks should invest in their institutional reputation, donor experience and dialogue with donors. These findings can be applied to other institutions that are considering setting up biobanks with broad consent for personal data use.
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