ArticleBMC research notes2019
A content validity and cognitive interview process to evaluate an Illness Perception Questionnaire for African Americans with type 2 diabetes.
Article in BMC research notes, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed, 17 citations in OpenAlex.
- Applying cognitive interviewing process to refine an instrument for measuring deprescribing experience and outcomes in older veterans.Journal of patient-reported outcomes · 2026Article
- A network analysis to explore illness perceptions in Black adults with type 2 diabetes.British journal of health psychology · 2025Article
- Cognitive Testing of Dietary Assessment and Receipt of Nutrition Services for Use in Population-Based Surveys: Results from a Demographic and Health Surveys Pilot in Uganda.Current developments in nutrition · 2025Article
- Integrating community perspectives to improve survey completion rates in public health research by refining controversial survey elements.Journal of clinical and translational science · 2025Article
- Using co-design to develop the Adolescent Health Literacy Questionnaire for adolescents in Ireland.Health promotion international · 2024Article
- A qualitative exploration of the experiences of peer leaders in an intervention to improve diabetes medication adherence in African Americans.BMC public health · 2023Article
- Psychometric evaluation of a culturally adapted illness perception questionnaire for African Americans with type 2 diabetes.BMC public health · 2022Article
- Using cognitive interviewing to bridge the intent-interpretation gap for nutrition coverage survey questions in India.Maternal & child nutrition · 2022Article
- Using an exploratory sequential mixed methods design to adapt an Illness Perception Questionnaire for African Americans with diabetes: the mixed data integration process.Health psychology and behavioral medicine · 2021Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveThe Illness Perception Questionnaire (IPQ) is the only available and empirically validated tool used to gain insight into patient illness beliefs. However, the IPQ has reliability and validity problems when used with African Americans (AAs) and needs to be culturally-adapted and validated for use with this group. This study aimed to utilize findings from focus groups to culturally adapt the IPQ for use in AAs with diabetes. Ten cognitive interviews among AAs with type 2 diabetes explored patients' interpretation and understanding of the adapted IPQ.
resultsForty-four new survey items were added to the IPQ. Twenty-nine of the forty-four items were determined as the appropriate number of questions to be tested because of time, and to reduce respondent burden. After the first round of interviews, an item-by-item review of the new items identified problems related to AA comprehension of certain items, their applicability, and wording/tone. Five items identified as problematic were related to AAs understanding of a cure for diabetes, their perception of how food influences their diabetes, how their identity as AAs influence diabetes control, and the dialogue about diabetes within their families and/or community. Findings support the newly developed illness perception questions as culturally specific to AAs with diabetes after being tested for content validity and participant understanding using cognitive interviews.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.