ArticlePloS one2019
Accuracy of self-reported history of autoimmune disease: A pilot study.
Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed.
- Limited penetrance of dominantly inherited AIRE variants in a population-based cohort.Human molecular genetics · 2026Article
- Comparison of health measures between survey self-reports and electronic health records among Millennium Cohort Study participants receiving Veterans Health Administration care.BMC medical research methodology · 2025Article
- Childhood and adolescent residential and farm pesticide exposures and inflammatory bowel disease incidence in a U.S. cohort of women.The Science of the total environment · 2024Article
- A novel method to monitor rheumatoid arthritis prevalence using hospital and medication databases.Arthritis research & therapy · 2024Article
- Prevalence and Variation of Medical Comorbidities in Oral Surgery Patients: A Retrospective Study at Jazan University.Medical science monitor : international medical journal of experimental and clinical research · 2024Observational
- The health and economic burden of musculoskeletal disorders in Belgium from 2013 to 2018.Population health metrics · 2023Article
- Global epidemiology of rheumatoid arthritis.Nature reviews. Rheumatology · 2022Review
- Immune Dysregulation in Autism Spectrum Disorder: What Do We Know about It?International journal of molecular sciences · 2022Review
- Plant-based dietary changes may improve symptoms in patients with systemic lupus erythematosus.Lupus · 2022Article
- Prevalence of autoimmune conditions in pregnant women in a tertiary maternity hospital: A cross-sectional survey and maternity database review.Obstetric medicine · 2021Article
- Delivering clinical trials at home: protocol, design and implementation of a direct-to-family paediatric lupus trial.Lupus science & medicine · 2021Article
- Validation of Self-Reported Rheumatoid Arthritis Using Medicare Claims: A Nationally Representative Longitudinal Study of Older Adults.ACR open rheumatology · 2021Article
- A Bayesian Model to Analyze the Association of Rheumatoid Arthritis With Risk Factors and Their Interactions.Frontiers in public health · 2021Article
- Association between inflammatory bowel disease and prostate cancer: A large-scale, prospective, population-based study.International journal of cancer · 2020Article
- Review
- Improving accuracy of self-reported diagnoses of rheumatoid arthritis in the French prospective E3N-EPIC cohort: a validation study.BMJ open · 2019Article
Corrections and comments
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Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Research associating the increased prevalence of familial autoimmunity with neuropsychiatric disorders is reliant upon the ascertainment of history of autoimmune diseases from relatives. To characterize the accuracy of self-report, we compared self-reported diagnoses of 18 autoimmune diseases using an online self-report questionnaire to the electronic medical record (EMR) diagnoses in 1,013 adult (age 18-70 years) patients of a primary care clinic. For the 11 diseases meeting our threshold observed prevalence, we estimated sensitivity, specificity, positive predictive value (PPV), and negative predictive value (NPV) for self-reported diagnoses under the assumption that EMR-based diagnoses were accurate. Six diseases out of 11 had either sensitivity or PPV below 50%, with the lowest PPV for dermatological and endocrinological diseases. Common errors included incorrectly self-reporting type 2 diabetes mellitus (DM), when type 1 DM was indicated by the EMR, and reporting rheumatoid arthritis when osteoarthritis was indicated by the EMR. Results suggest that ascertainment of familial autoimmunity through self-report contributes to inconsistencies and inaccuracies in studies of autoimmune disease history and that future studies would benefit from incorporating EMR review and biological measures.
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