ArticleJournal of child neurology2019
Neurodevelopmental Risk: A Tool to Enhance Conversations With Families of Infants.
Article in Journal of child neurology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
9 citing papers in PubMed.
- Question prompt lists and caregiver question asking in pediatric specialty appointments: A randomized controlled trial.Patient education and counseling · 2023Trial
- Inpatient morbidities and medical technology use at 2 years among extremely preterm infants.Pediatric research · 2026Observational
- A Novel Question Prompt List for Parents of Neonates With Seizures.Pediatric neurology · 2024Article
- Evaluation of a Novel Question Prompt List in Pediatric Surgical Oncology.The Journal of surgical research · 2023Article
- A question prompt list for sudden unexpected death in epilepsy.Annals of the Child Neurology Society · 2023Article
- "Reading the room:" A qualitative analysis of pediatric surgeons' approach to clinical counseling.Journal of pediatric surgery · 2023Article
- A valued voice: A qualitative analysis of parental decision-making preferences in emergent paediatric surgery.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Assessment of parent understanding in conferences for critically ill neonates.Patient education and counseling · 2022Article
- Supporting families in their child's journey with neonatal encephalopathy and therapeutic hypothermia.Seminars in fetal & neonatal medicine · 2021Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
Parents of infants at risk of neurodevelopmental impairment require clear and individualized information about what to expect for their child, yet data suggest they have difficulty knowing how to ask for this information. Here, we pilot a Question Prompt List (QPL) with parents of infants at risk of neurodevelopmental impairment. To assess real-time use of the QPL, we recorded family meetings and collected data from parents and clinicians about the QPL experience. Qualitative data were analyzed using directed content analysis. Ten parents were enrolled. In family meetings, clinicians universally acknowledged the QPL and most used the QPL to guide meeting content. All parents who used the QPL found it useful and would recommend the tool to others. In interviews, parents described that the QPL offered novel questions and facilitated more prepared answers from the team. Future studies should test the impact of this QPL on parent understanding and communication quality.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.