SynthesisHealth expectations : an international journal of public participation in health care and health policy2019
Patient and Public Involvement and Engagement in a doctoral research project exploring self-harm in older adults.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
35 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Self-mutilation: a systematic review.Forensic science, medicine, and pathology · 2025Pooled it
- Systematic review on the frequency and quality of reporting patient and public involvement in patient safety research.BMC health services research · 2024Pooled it
- The benefits, challenges, and best practice for patient and public involvement in evidence synthesis: A systematic review and thematic synthesis.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Including older people in health and social care research: best practice recommendations based on the INCLUDE framework.Age and ageing · 2023Guideline
- Patient and Public Involvement and Engagement in a doctoral research project exploring self-harm in older adults.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- A report on parent involvement in planning a randomised controlled trial in neonatology and lactation - insights for current and future research.International breastfeeding journal · 2022Trial
- A critical reflective analysis of patient and public involvement in a programme of heart failure with preserved ejection fraction research.Research involvement and engagement · 2026Article
- Methods of Engaging Interest-Holders in Healthcare Evidence Syntheses: A Scoping Review.Cochrane evidence synthesis and methods · 2026Review
- 'Making little ethical decisions all the time': examining an ethical framework for consumer and community involvement in research, a co-produced ethnographic study.BMC medical ethics · 2025Article
- "Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2025Article
- Emerging practice in mental health patient and public involvement research advisory groups: a narrative review.BMC psychiatry · 2025Review
- The role of public and patient involvement in designing a web-based, physical activity application for individuals with severe mental illness.Research involvement and engagement · 2025Article
- Evaluation of the impact of patient and public involvement on doctoral students in palliative dementia care research.Research involvement and engagement · 2025Article
- Adapting Experience-Based Co-Design to Disability Research: Co-Producing the CycLink Co-Design Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Involving People With Lived Experience in Electronic Health Record Database Studies Reflections and Learning From the CHOOSE Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Evaluation of Public Involvement in Doctoral Research Using a Four-Dimensional Theoretical Framework.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- PPIE in a technical research study: Using public involvement to refine the concept and understanding and move towards a multidimensional concept of disability.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Public involvement in chronic respiratory diseases research: A qualitative study of patients', carers' and citizens' perspectives.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study.Research involvement and engagement · 2023Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundThe contribution of involving patients and public in health research is widely reported, particularly within mental health research. Less is written about such contributions to doctoral research. The research focus of this doctoral research, self-harm in older adults, was put forward by a Patient Public Involvement Engagement (PPIE) group, who contributed to its development.
aimsCritically reflect on the process, potential impact and identify challenges and opportunities in involving robust PPIE in a doctoral study.
methodsThree PPIE members contributed to a systematic review (SR) and a qualitative study through a series of four workshops to meet the aims of the study. PPIE contributed to developing the SR review questions, protocol, data analysis and dissemination of findings. For the qualitative study, they helped develop research questions, protocol, public-facing documentation, recruitment strategies and data analysis. Involvement followed the GRIPP2-SF reporting checklist.
resultsPPIE enhanced methodological rigour, data analysis, interpretation and dissemination of findings. Challenges included lack of ethical guidance, time-related pressures and ensuring support for PPIE members. These were successfully managed through ongoing dialogue and regular communication.
conclusionsPPIE can enhance the quality and depth of doctoral research, as lived experiences shared by PPIE members add to research's components. Exposing early-career researchers to PPIE can build research cultures sensitive to PPIE's potential contribution and develop the expertise needed to avoid tokenistic involvement. Capturing lay perspectives is essential in mental health research to ensure research findings are accessible and that findings inform clinical practice. However, clear guidance on the ethical dimensions to PPIE is needed.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.