Evidence map›Paper›PMID 31131523›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2019

The role of patients and carers in diffusing a health-care innovation: A case study of "My Medication Passport".

Susan Barber, Catherine French, Rachel Matthews, Derryn Lovett, Tom Rollinson, Fran Husson, Margaret Turley, Julie Reed

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  3. Article
  4. Article
  5. Review
  6. Article
  7. Article
  8. The role of patients and carers in diffusing a health-care innovation: A case study of "My Medication Passport".Health expectations : an international journal of public participation in health care and health policy · 2019
    Article
  9. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Susan BarberNIHR Collaboration for Leadership in Applied Health Care and Research (CLAHRC) Northwest London, Chelsea & Westminster Hospital NHS Foundation Trust, Department of Primary Care and Public Health, Imperial College London, London, UK.ORCID 0000-0002-5742-9639
Catherine FrenchNIHR Collaboration for Leadership in Applied Health Care and Research (CLAHRC) Northwest London, Chelsea & Westminster Hospital NHS Foundation Trust, Department of Primary Care and Public Health, Imperial College London, London, UK.ORCID 0000-0001-8898-1162
Rachel MatthewsNIHR Collaboration for Leadership in Applied Health Care and Research (CLAHRC) Northwest London, Chelsea & Westminster Hospital NHS Foundation Trust, Department of Primary Care and Public Health, Imperial College London, London, UK.ORCID 0000-0001-9296-7443
Derryn LovettNIHR Collaboration for Leadership in Applied Health Care and Research (CLAHRC) Northwest London, Chelsea & Westminster Hospital NHS Foundation Trust, Department of Primary Care and Public Health, Imperial College London, London, UK.
Tom RollinsonUniversity Hospitals of Derby and Burton NHS Foundation Trust, Derby, UK.
Fran HussonNIHR Collaboration for Leadership in Applied Health Care and Research (CLAHRC) Northwest London, Chelsea & Westminster Hospital NHS Foundation Trust, Department of Primary Care and Public Health, Imperial College London, London, UK.
Margaret TurleyNIHR Collaboration for Leadership in Applied Health Care and Research (CLAHRC) Northwest London, Chelsea & Westminster Hospital NHS Foundation Trust, Department of Primary Care and Public Health, Imperial College London, London, UK.
Julie ReedNIHR Collaboration for Leadership in Applied Health Care and Research (CLAHRC) Northwest London, Chelsea & Westminster Hospital NHS Foundation Trust, Department of Primary Care and Public Health, Imperial College London, London, UK.ORCID 0000-0002-9974-2017

Funding

National Institute for Health Research
6 · The paper itself

Abstract

backgroundPatients are increasingly recognized as playing important roles in improving health services. Little is known about the mechanisms by which patients develop and diffuse local innovations in a complex health-care system.

objectiveTo ascertain how diffusion of an innovation, My Medication Passport, occurred and roles played by patients in it.

designCase study: quantitative mapping of innovation's diffusion and analysis of the routes and occupations of those through whom the innovation spread; documentary analysis; reflective assessment of patient's roles. SETTING AND

participantsNHS Trusts, third sector organizations, patients and health-care professionals. INTERVENTIONS STUDIED: Co-produced action to raise awareness and influence use of the innovation; order database which enabled ease of access to the innovation.

main outcome measuresGeographical spread of innovation; occupations of individuals; types of organizations using the innovation.

resultsThe innovation spread from initial development and use in Northwest London across the UK and beyond. Key roles played by patients were as follows: co-producer; advocate; relationship builder; relationship broker; planner; presenter; awareness raiser; trainer; networker. Patients identified and introduced potential audiences and users to MMP, using social, organizational, sectoral, lay and professional networks to do so. They organized a range of awareness-raising and communication activities, monitored feedback, evaluated the impact and responded to new interest. DISCUSSION AND

conclusionsThe roles of patients in diffusing innovations are under-recognized. Collaborative working between patients, carers and health-care professionals in planning and progressing the use and supporting diffusion of the innovation was important. Principles described in this study are relevant to progressing other patient-led ideas for innovative changes relating to health service development.

Indexed as

CaregiversDiffusion of InnovationAwarenessCommunicationHealth Services ResearchHumansInterpersonal RelationsOccupationsPatient ParticipationSocial NetworkingState MedicineUnited Kingdomcase studyco-productiondiffusionhealth careinfrastructure supportinnovationpatient's rolesself-care

Identifiers

PMID31131523
PMCPMC6737838

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.