ArticleBMC geriatrics2019
Moving beyond 'safety' versus 'autonomy': a qualitative exploration of the ethics of using monitoring technologies in long-term dementia care.
Article in BMC geriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 6 syntheses or guidelines pooled it, 65 citations in OpenAlex.
- Emerging technologies and vulnerabilities in older adults with cognitive impairments: a systematic review of qualitative evidence.BMC geriatrics · 2026Pooled it
- Ethical dilemmas in the care of patients with Alzheimer's disease and related dementias unable to give informed consent: positioning Lebanon within the Global North-South context.BMC medical ethics · 2025Pooled it
- Enhancing Enrollment and Adherence in Long-Term Wearable Research on Dementia: Qualitative Systematic Review and Meta-Synthesis.JMIR aging · 2025Pooled it
- Factors Affecting Clinician Readiness to Adopt Smart Home Technology for Remote Health Monitoring: Systematic Review.JMIR aging · 2024Pooled it
- Factors Affecting the Implementation, Use, and Adoption of Real-Time Location System Technology for Persons Living With Cognitive Disabilities in Long-term Care Homes: Systematic Review.Journal of medical Internet research · 2021Pooled it
- Pooled it
- Development of an AI-Enabled Remote Loneliness Assessment System for Older Adults Using Behavioral and Speech Data From IoT Sensors and Smart Speakers.Assessment · 2026Article
- Perceptions of care home residents, families and staff about wearable devices: a scoping review.European geriatric medicine · 2026Article
- A Scoping Review on Strategies for Navigating Conflicting Rights Between Safety and Autonomy in Residential Long-Term Care in the United States.Journal of the American Geriatrics Society · 2026Article
- Guiding the Ethics of Locator Devices in Dementia Care: Tutorial on Developing a Question-Based Ethical Framework.Journal of medical Internet research · 2026Article
- Distant Presence: Care Workers' Experiences of Digital Monitoring Systems in Dementia Care.Scandinavian journal of caring sciences · 2026Article
- Article
- Barriers and facilitators to data-informed care planning in long-term care in Nova Scotia, Canada: a qualitative study.BMC health services research · 2026Article
- Artificial intelligence in dementia care: challenges, controversies, and policy implications.Frontiers in dementia · 2026Article
- Multi Perspective Considerations for Health Smart Home: Early Phase Exploratory Study.Journal of advanced nursing · 2026Article
- Real-time location system implementation in dementia care: Stakeholder perspectives.The Gerontologist · 2025Article
- Translational framework for implementation evaluation and research: implementation strategies derived from normalization process theory.Implementation science : IS · 2025Article
- Article
- Ethics of Sensor-Based Surveillance of People with Dementia in Clinical Practice.Sensors (Basel, Switzerland) · 2025Article
- Values of Stakeholders Involved in Applying Surveillance Technology for People With Dementia in Nursing Homes: Scoping Review.JMIR aging · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundUse of monitoring technologies (e.g. wearable or environmental sensors) in long-term care generates extensive ethical debate, primarily about their potential to enhance resident safety weighed against concerns about their impacts upon resident autonomy. There are a number of other ethical aspects which are far less debated, including questions about the monitoring of the workforce, and equality of access to technologies. In this paper, we explore the extent to which remote monitoring of the workforce, and equality of access to technologies, were seen to influence the implementation of monitoring technologies within long-term care facilities.
methodsAn embedded multiple-case study design was used with three dementia-specialist care facilities in England that had experience using a range of monitoring technologies. Data were collected through 175 h' observation of daily practice, semi-structured interviews with 36 staff, residents and relatives, and examination of organisational documentation and technology manufacturer literature. Data were analysed using Framework Analysis.
resultsUse of technologies for workforce monitoring was understood in relation to the ethical obligations to fulfil a duty of care to residents. There was little recognition of any negative implications for the workforce, but staff were susceptible to rumours that technologies were being used for performance management even when this was not the case. There were questions about how far data collected by monitoring technologies could constitute 'evidence' of appropriate care delivery. Equality and access to technologies involved a need to compromise between generic designs that were not universally suitable, but were more affordable than bespoke designs. Contracts with suppliers imposed limitations on product choice.
conclusionsThere is an urgent need for greater consideration of the ethical and legal implications that remote technological monitoring might have upon workforce morale, recruitment and retention. Ensuring variety of technological design to facilitate equitable access for residents is financially extremely challenging. It is possible that considerations of equitable access are not deemed a priority due to the current generation of residents' low levels of technological familiarity and expectation. It might be overstated and unrealistic to view expensive technologies as the pinnacle of innovative practice in care homes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.