Evidence map›Paper›PMID 31124030›Full record

SynthesisJournal of autism and developmental disorders2019

A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults.

David Mason, Barry Ingham, Anna Urbanowicz, Cos Michael, Heather Birtles, Marc Woodbury-Smith, Toni Brown, Ian James, Clare Scarlett, Christina Nicolaidis and 1 more

Open access · hybridAbstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Journal of autism and developmental disorders, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 129 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
129citing papers in PubMed, 6 pooled it
14.0field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

129 citing papers in PubMed, 6 syntheses or guidelines pooled it, 257 citations in OpenAlex.

  1. Pooled it
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  5. Loneliness in autistic adults: A systematic review.Autism : the international journal of research and practice · 2022
    Pooled it
  6. Pooled it
  7. Trial
  8. Feasibility Study of a Novel App-Based Anxiety Intervention for Autistic People.Autism research : official journal of the International Society for Autism Research · 2026
    Trial
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  20. Mortality in Autism: A Longitudinal Register-Based Study.Journal of autism and developmental disorders · 2026
    Article

69 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 6 institutions in 3 countries.

David MasonInstitute of Neuroscience, Newcastle University, Sir James Spence Institute level 3, Royal Victoria Infirmary, Newcastle upon Tyne, NE1 4LP, UK. David.Mason@newcastle.ac.uk.
Barry InghamInstitute of Neuroscience, Newcastle University, Sir James Spence Institute level 3, Royal Victoria Infirmary, Newcastle upon Tyne, NE1 4LP, UK.
Anna UrbanowiczGlobal, Urban and Social Studies, RMIT University, Melbourne, VIC, Australia.
Cos Michael, London, UK.
Heather BirtlesNewcastle University, Newcastle upon Tyne, UK.
Marc Woodbury-SmithInstitute of Neuroscience, Newcastle University, Sir James Spence Institute level 3, Royal Victoria Infirmary, Newcastle upon Tyne, NE1 4LP, UK.
Toni BrownNorthumberland, Tyne & Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
Ian JamesCampus for Ageing and Vitality, Newcastle General Hospital, Newcastle upon Tyne, UK.
Clare ScarlettNHS North Tyneside CCG, North Shields, UK.
Christina NicolaidisPortland State University, Portland, USA.
Jeremy R ParrInstitute of Neuroscience, Newcastle University, Sir James Spence Institute level 3, Royal Victoria Infirmary, Newcastle upon Tyne, NE1 4LP, UK.
Royal Victoria Infirmary · GBNewcastle University · GBCumbria Northumberland Tyne and Wear NHS Foundation Trust · GBNewcastle Hospitals - Campus for Ageing and Vitality · GBPortland State University · USRMIT University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical healthcare access for autistic people. A total of 3111 records were screened and six studies were included: two quantitative, two qualitative, and two mixed-methodology studies. Patient-provider communication, sensory sensitivities, and executive functioning/planning issues emerged as important barriers to healthcare. Recommendations for clinicians and those planning services are discussed.

Indexed as

CommunicationAdultAutistic DisorderExecutive FunctionHealth Services AccessibilityHumansAdultAutismBarriersHealthcare accessPhysical healthSensory sensitivities

Identifiers

PMID31124030
PMCPMC6647496
OpenAlexW2945521062

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.