ArticleJournal of cancer research and clinical oncology2019
Information needs, communication and usage of social media by cancer patients and their relatives.
Article in Journal of cancer research and clinical oncology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
50 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- The Impact of Social Media Videos on Quantitative Health Outcomes: Systematic Review.JMIR infodemiology · 2026Pooled it
- Social Media and eHealth Literacy Among Older Adults: Systematic Literature Review.Journal of medical Internet research · 2025Pooled it
- Social media for palliative and end-of-life care research: a systematic review.BMJ supportive & palliative care · 2024Pooled it
- Factors influencing the e-health literacy in cancer patients: a systematic review.Journal of cancer survivorship : research and practice · 2023Pooled it
- Social Media Use for Health Purposes: Systematic Review.Journal of medical Internet research · 2021Pooled it
- Managing uncertainty in antibiotic decisions: factors influencing antibiotic use among chinese parents of children in a multi-source information environment.International journal of qualitative studies on health and well-being · 2026Article
- Association between information overload, asthenopia, and depressive and anxiety symptoms in patients with lung cancer: A computer-simulated network analysis.Asia-Pacific journal of oncology nursing · 2026Article
- Knowledge and Use of Herbal Medicine Among Urban Adolescents and Young Adults in Western Mexico: Family Transmission, Social Media Exposure, and Associated Factors.Healthcare (Basel, Switzerland) · 2026Article
- Beyond Visibility: Social Media, Trust, and Responsibility in Oncology.Journal of immunotherapy and precision oncology · 2026Article
- Evaluating the efficacy of digital media platforms in disseminating public health information: A global review with implications for South Africa.African journal of primary health care & family medicine · 2026Review
- Optimizing social media influencers for health communication in Africa.Global health action · 2025Article
- Evaluating How Patients with Thyroid Cancer Use Online Resources and Social Media to Access Health Information.Journal of cancer education : the official journal of the American Association for Cancer Education · 2025Article
- Evaluating the Feasibility of Web-Monitoring Methodology for Measuring Exposure to Online Cancer Misinformation.JMIR cancer · 2025Article
- Assessment of educational YouTube videos on proximal humeral fracture treatment (YouTube videos on proximal humeral fractures).JSES international · 2025Review
- The influence of social media on patient and public perception of vasectomy: a narrative review.International journal of impotence research · 2025Review
- Evolutionary Trend of Dental Health Care Information on Chinese Social Media Platforms During 2018-2022: Retrospective Observational Study.JMIR infodemiology · 2025Observational
- Social Media as a Platform for Cancer Care Decision-Making Among Women: Internet Survey-Based Study on Trust, Engagement, and Preferences.JMIR cancer · 2025Article
- Assessing the role of conspiracy beliefs in oncological treatment decisions: An experimental approach.Applied psychology. Health and well-being · 2025Article
- Exploring the Social Media Discussion of Breast Cancer Treatment Choices: Quantitative Natural Language Processing Study.JMIR cancer · 2025Article
- The impact of cancer information overload on negative emotions in newly diagnosed lung cancer patients: the mediating role of fear of progression and the moderating role of social support.Frontiers in psychiatry · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe aim of this study was to evaluate cancer patients' need for information, their communication and usage of social media.
methodsWe developed a standardized questionnaire comprising sections on information needs, communication behavior and usage of social media with respect to cancer and combined this with a validated instrument on eHealth literacy for patients. This questionnaire was provided online and with the help of bloggers and leaders of social media groups, distributed in their networks.
resultsThe Internet was the most important information source (n = 308; 77.4%). Yet, most of the participants wanted to get information from their doctor (n = 342; 85.9%). With respect to trust in a source of information, oncologists were named most often (n = 285; 71.6%). On the one hand, many participants got in contact with others, especially peers, via social media (n = 319; 80.3%) with a growing bond to their family members on the other hand (n = 324; 81.6%). The cancer diagnosis was an impulse for starting with active participation in social media for some participants (n = 196; 49.2%).
conclusionsWith social media gaining importance as source of information for patients, improving the quality of information in these networks is an important task in health care systems.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.