ArticleInternational journal of chronic obstructive pulmonary disease2019
To live a life with COPD - the consequences of symptom burden.
Article in International journal of chronic obstructive pulmonary disease, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.
- Support and Its Effect for Persons Affected by COPD and Their Next of Kin - an Systematic Integrative Review.International journal of chronic obstructive pulmonary disease · 2025Pooled it
- Development of a theory-based self-management digital intervention to promote physical activity in people living with chronic obstructive pulmonary disease: Respir'air BPCO.International journal of nursing studies advances · 2026Article
- Article
- Systematic review of dynamically tailored eHealth interventions targeting physical activity and healthy diet in chronic disease.NPJ digital medicine · 2025Article
- Chronic Obstructive Pulmonary Disease: An Analysis of Online Patient Testimony on Treatment Adherence.Journal of clinical medicine · 2025Article
- Finding the Extraordinary in the Ordinary: Understanding the Role of Everyday Life in Coping With Health Challenges.Nursing philosophy : an international journal for healthcare professionals · 2025Article
- A Metasynthesis of Qualitative Literature to Inform the Selection of Meaningful and Measurable Health Concepts for Clinical Trials in COPD.Chronic obstructive pulmonary diseases (Miami, Fla.) · 2025Article
- Challenges and Opportunities for the Management of COPD: A Narrative Review of Patient and Health Care Professional Perspectives.Chronic obstructive pulmonary diseases (Miami, Fla.) · 2025Article
- Validity of the Chronic Airways Assessment Test (CAAT) in asthma, asthma+COPD and COPD in NOVELTY.ERJ open research · 2025Article
- Is Disease Stability an Attainable Chronic Obstructive Pulmonary Disease Treatment Goal?American journal of respiratory and critical care medicine · 2025Review
- The Effects of Home High-Flow Nasal Cannula Oxygen Therapy on Clinical Outcomes in Patients with Severe COPD and Frequent Exacerbations.Journal of clinical medicine · 2025Article
- Patient Perceptions on the Role of Informal Caregiver Support in Managing Advanced COPD.Journal of patient experience · 2025Article
- Chronic obstructive pulmonary diseasés impact on the affected person and next of kin: A mixed methods study.Chronic illness · 2024Article
- Living with COPD: understanding patient experiences through the lens of photovoice.BMC pulmonary medicine · 2023Article
- Informal carers in Sweden - striving for partnership.International journal of qualitative studies on health and well-being · 2021Article
- The information needs of people with COPD-The holistic approach with special reference to gender and time since diagnosis.Nursing open · 2021Article
- Experiences of Pulmonary Rehabilitation in People Living with Chronic Obstructive Pulmonary Disease and Frailty. A Qualitative Interview Study.Annals of the American Thoracic Society · 2020Article
- The Effects of Low Pressure Domiciliary Non-Invasive Ventilation on Clinical Outcomes in Patients with Severe COPD Regardless Having Hypercapnia.International journal of chronic obstructive pulmonary diseaseArticle
- The experience of caregiver burden when being next of kin to a person with severe chronic obstructive pulmonary disease: A qualitative study.Chronic respiratory diseaseArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Chronic obstructive pulmonary disease (COPD) is a prevalent illness that, due to its symptoms and treatment, entails a significant burden for the affected person, and his/her family, health care and private finances. Today, knowledge and understanding are sparse regarding COPD-affected persons' own lived experiences and about the symptom burden and its effect on their daily life. Due to this knowledge gap the aim of this study was to identify and describe the symptom burden and its effect on daily life in people with COPD, based on their own lived experiences. Subject and method: Eleven males and 14 females in GOLD stages III and IV, in an age range of 58-82 years, were interviewed. An interview guide was used to direct the face-to-face interviews. Data was analyzed with thematic analysis following the six steps according to Braun and Clarke. Results: The results highlighted one theme: an altered everyday life. The altered everyday life leads to a need for support to handle everyday life and for different strategies to live as desired. Persons with COPD need to take each day as it comes and their life is not easy to plan since it depends on how they feel from day to day. Life is handled with several strategies such as breathing techniques, and ways to take care of the home and garden as well as the emotions. Support from the next of kin, society and the health care service is important. Conclusion: This study provides the insight that persons with COPD in stages III and IV have an altered life caused by the symptom burden. They must struggle with strategies to handle everyday life. There is a need of support from the next of kin and society to facilitate daily living, but this support needs to be well-balanced.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.