Evidence map›Paper›PMID 31114172›Full record

ArticlePatient preference and adherence2019

Guided asthma self-management or patient self-adjustment? Using patients' narratives to better understand adherence to asthma treatment.

Biagina-Carla Farnesi, Francine M Ducharme, Lucie Blais, Johanne Collin, Kim L Lavoie, Simon L Bacon, Martha L McKinney, Sandra Peláez

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Patient preference and adherence, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Article
  2. Review
  3. Integrating asthma care guidelines into primary care electronic medical records: a review focused on Canadian knowledge translation tools.European respiratory review : an official journal of the European Respiratory Society · 2024
    Review
  4. Article
  5. Article
  6. Review
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Biagina-Carla FarnesiDepartment of Health, Kinesiology, and Applied Physiology, Concordia University, Montreal, QC Canada.
Francine M DucharmeDepartments of Pediatrics and of Social and Preventive Sciences, University of Montreal, Montreal, QC Canada.
Lucie BlaisFaculty of Pharmacy, University of Montreal, Montreal, QC Canada.
Johanne CollinFaculty of Pharmacy, University of Montreal, Montreal, QC Canada.
Kim L LavoiePsychology Department, University of Quebec at Montreal, Montreal, QC Canada.
Simon L BaconDepartment of Health, Kinesiology, and Applied Physiology, Concordia University, Montreal, QC Canada.
Martha L McKinneyCHU Ste-Justine, University of Montreal, Montreal, QC Canada.
Sandra PeláezResearch Centre, CHU Sainte-Justine, University of Montreal, Montreal, QC Canada, sandra.pelaez@umontreal.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe purpose of this study was to better understand patients' perspective of asthma self-management by focusing on the sociocultural and medical context shaping patients' illness representations and individual decisions. PATIENTS AND

methodsWe conducted a secondary analysis of semi-structured interviews carried out as part of a multicentered collective qualitative case study. In total, 24 patients, aged 2-76 years with a confirmed diagnosis of asthma (or were parents of a child), who renewed the prescription for inhaled corticosteroids in the past year, participated in this study. The thematic analysis focused on asthma-related events and experiences reported by the patients. Consistent with narrative inquiry, similar patterns were grouped together, and three vignettes representing the different realities experienced by the patients were created.

resultsThe comparison of experiences and events reported by the patients suggested that patients' perceptions and beliefs regarding asthma and treatment goals influenced their self-management-related behaviors. More specifically, the medical context in which the patients were followed (ie, frame in which the medical encounter takes place, medical recommendations provided) contributed to shape their understanding of the disease and the associated treatment goals. In turn, a patient's perception of the disease and the treatment goals influenced asthma self-management behaviors related to environmental control, lifestyle habits, and medication intake.

conclusionCurrent medical recommendations regarding asthma self-management highlight the importance of the physicians' guidance through the provision of a detailed written action plan and asthma education. These data suggest that while physicians contribute to shaping patients' beliefs and perceptions about the disease and treatment goals, patients tend to listen to their own experience and manage the disease accordingly. Thus, a medical encounter between the patient and the physician, aiming at enhancing a meaningful conversation about the disease, may lead the patient to approach the disease in a more effective manner, which goes beyond taking preventative paths to avoid symptoms.

Indexed as

adherenceasthmanarrative inquirypatient-physician relationshipself-managementwritten action plan

Identifiers

PMID31114172
PMCPMC6485321

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.