SynthesisBMJ open2019
Long-term unmet needs after stroke: systematic review of evidence from survey studies.
Synthesis in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05185271 (Adopting Dyad-focused Strategy Training to Stroke Survivors and Their Caregivers), which is not on this map. Cited by 70 papers, 9 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Adopting Dyad-focused Strategy Training to Stroke Survivors and Their Caregivers: Intervention Development and a Feasibility Study
Who cites it
70 citing papers in PubMed, 9 syntheses or guidelines pooled it.
- Physical rehabilitation approaches for the recovery of function and mobility following stroke.The Cochrane database of systematic reviews · 2025Pooled it
- Prevalence, Trajectory, and Factors Associated With Patient-Reported Nonmotor Outcomes After Stroke: A Systematic Review and Meta-Analysis.JAMA network open · 2025Pooled it
- Effectiveness of psychoeducational intervention in promoting post-stroke self-care: a systematic literature review.Frontiers in rehabilitation sciences · 2025Pooled it
- Pooled it
- Measured and Perceived Effects of Upper Limb Home-Based Exergaming Interventions on Activity after Stroke: A Systematic Review and Meta-Analysis.International journal of environmental research and public health · 2022Pooled it
- The effect of time spent in rehabilitation on activity limitation and impairment after stroke.The Cochrane database of systematic reviews · 2021Pooled it
- Unmet care needs of community-dwelling stroke survivors: a systematic review of quantitative studies.BMJ open · 2021Pooled it
- The Unmet Needs of Community-Dwelling Stroke Survivors: A Systematic Review of Qualitative Studies.International journal of environmental research and public health · 2021Pooled it
- Inconsistent Classification of Mild Stroke and Implications on Health Services Delivery.Archives of physical medicine and rehabilitation · 2020Pooled it
- Access to and Use of Internet and Social Media by Low-Morbidity Stroke Survivors Participating in a National Web-Based Secondary Stroke Prevention Trial: Cross-sectional Survey.Journal of medical Internet research · 2022Trial
- Unmet needs for stroke patients based on the social ecological model: protocol for a mixed-methods systematic review.BMJ open · 2026Article
- Heterogeneity in symptom burden and supportive care needs among older adults with ischemic stroke: a cross-sectional study.BMC geriatrics · 2026Article
- Exploring key stakeholder perceptions on the impact of younger stroke: a multinational, qualitative interview study.BMJ open · 2026Article
- Lived Experiences of Returning to Participation After Mild Stroke: A Phenomenological Study in Spain.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Access to neighborhood destinations that offer opportunities for physical activity and socialization is associated with favorable post-stroke outcomes.Journal of stroke and cerebrovascular diseases : the official journal of National Stroke Association · 2026Article
- Self-care in stroke rehabilitation: a qualitative study.Revista brasileira de enfermagem · 2026Article
- Stroke survivors' and carers' experiences of nutritional care after stroke: a qualitative study.Frontiers in stroke · 2026Article
- Stroke Action Plan for Europe 2018-2030 (SAP-E): mid-term review and update.European stroke journal · 2026Review
- Severity-graded supportive care need profiles in older adults during recovery after ischemic stroke: a latent profile analysis.Frontiers in public health · 2026Article
- Clinician Perceptions of a Novel Multicomponent Digital Care Assistant and Support Program for People After Stroke or Transient Ischemic Attack (CAPS) for the Secondary Prevention of Stroke: Qualitative Study.JMIR human factors · 2025Article
10 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo synthesise evidence on longer term unmet needs perceived by stroke survivors, and psychometric properties of the tools used to evaluate unmet care needs after stroke.
designSystematic review.
settingCommunity or patients' home.
participantsStroke survivors.
methodsWe searched PubMed, PsycINFO, CINAHL, EMBASE from inception to 31 March 2018 to identify survey studies that evaluated unmet needs perceived by stroke survivors after hospital discharge. Reported unmet needs were categorised under three domains: body functioning, activity/participation and environmental factors. Ranges of prevalence rates of unmet needs reported in studies were presented.
resultsWe included 19 eligible studies, with considerable heterogeneity in patients, survey methods and results. Psychometric properties of two stroke-specific tools were formally evaluated, indicating their moderate reliability and content/concurrent validity. The median number of reported unmet needs per stroke survivor was from two to five, and the proportion of stroke survivors with at least one unmet needs was on average 73.8% (range 19.8%- 91.7%). Unmet needs perceived by stroke survivors included 55 records of unmet body functioning needs, 47 records of unmet activities/participatory needs and 101 records of unmet environmental needs. Common unmet service needs were unmet information needs (3.1%- 65.0%), transport (5.4%-53.0%), home help/personal care (4.7%-39.3%) and therapy (2.0%-35.7%).
conclusionsThe prevalence of unmet long-term needs is high among stroke survivors, and there is considerable heterogeneity in type and frequency of specific unmet needs. More research is required to link regular assessment of long-term unmet needs of stroke survivors with the provision of cost-effective patient-centred health and social care services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.