ArticlePatient education and counseling2019
Patient access to clinical notes in oncology: A mixed method analysis of oncologists' attitudes and linguistic characteristics towards notes.
Article in Patient education and counseling, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- Providing Mobile Patient Access to Their Electronic Secondary Care Patient Record in Adults With Cystic Fibrosis: Results of a Prospective, Parallel, Randomized Open-Pilot Quantitative Study.JMIR formative research · 2025Trial
- Advice From Adolescents With Cancer, Their Caregivers, and Clinicians on Utilizing and Improving Patient Portals in Adolescent Oncology Care.Pediatric blood & cancer · 2026Article
- Evaluating the role of visit audio recordings in triadic dementia care: study protocol.BMC geriatrics · 2025Article
- Changes in Documentation After Implementing Open Notes in Mental Health Care: Pre-Post Mixed Methods Study.Journal of medical Internet research · 2025Article
- Optimizing patient understanding of spine MRI reports using AI: A prospective single center study.Interventional pain medicine · 2025Article
- Impact of Patient Online Record Access on Documentation: Scoping Review.Journal of medical Internet research · 2025Article
- The Impact of Collaborative Documentation on Person-Centered Care: Textual Analysis of Clinical Notes.JMIR medical informatics · 2024Article
- Changes in Documentation Due to Patient Access to Electronic Health Records: Protocol for a Scoping Review.JMIR research protocols · 2023Article
- Impact of the Immediate Release of Clinical Information Rules on Health Care Delivery to Patients With Cancer.JCO oncology practice · 2023Article
- Attitudes and Experiences of Clinicians After Mandated Implementation of Open Notes by the 21st Century Cures Act: Survey Study.Journal of medical Internet research · 2023Article
- Integrating patient-centeredness into online patient-clinician communication: a qualitative analysis of clinicians' secure messaging usage.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Negative Patient Descriptors: Documenting Racial Bias In The Electronic Health Record.Health affairs (Project Hope) · 2022Article
- Changes in Clinician Attitudes Toward Sharing Visit Notes: Surveys Pre-and Post-Implementation.Journal of general internal medicine · 2021Article
- Open notes sounds great, but will a provider's documentation change? An exploratory study of the effect of open notes on oncology documentation.JAMIA open · 2021Article
- Physician Use of Stigmatizing Language in Patient Medical Records.JAMA network open · 2021Article
- Open notes in cancer care: coming soon to patients.The Lancet. Oncology · 2020Article
- Does Patient Access to Clinical Notes Change Documentation?Frontiers in public health · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundProviders have expressed concern about patient access to clinical notes. There is the possibility that providers may linguistically censor notes knowing that patients have access. PURPOSE: Qualitative interviews and a pre- and post- linguistic analysis of the implementation of OpenNotes was performed to determine whether oncologists changed the content and style of their notes.
methodsMixed methods were utilized, including 13 semi-structured interviews with oncologists and random effects modeling of over 500 clinical notes. The Linguistic Inquiry and Word Count program was used to evaluate notes for emotions, thinking styles, and social concerns.
resultsNo significant differences from pre- and post-implementation of OpenNotes was found. Thematic analysis revealed that oncologists were concerned that changing their notes would negatively impact multidisciplinary communication. However, oncologists acknowledged that notes could be more patient-friendly and may stimulate patient-provider communication.
conclusionsAlthough oncologists were aware that patients could have access, they felt strongly about not changing the content of notes. A comparison between pre- and post-implementation confirmed this view and found that notes did not change. PRACTICE IMPLICATIONS: Patient access to oncologist's notes may serve as an opportunity to reinforce important aspects of the consultation.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.