Evidence map›Paper›PMID 31104290›Full record

ArticleJournal of assisted reproduction and genetics2019

Patient-centered elective egg freezing: a binational qualitative study of best practices for women's quality of care.

Marcia C Inhorn, Daphna Birenbaum-Carmeli, Lynn M Westphal, Joseph Doyle, Norbert Gleicher, Dror Meirow, Martha Dirnfeld, Daniel Seidman, Arik Kahane, Pasquale Patrizio

Open access · bronzeAbstract read
In one paragraph

Article in Journal of assisted reproduction and genetics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
4.1field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 33 citations in OpenAlex.

  1. Article
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  9. Disposition preferences in oocyte preservation patients.Journal of assisted reproduction and genetics · 2022
    Article
  10. Article
  11. Financing future fertility: Women's views on funding egg freezing.Reproductive biomedicine & society online · 2022
    Article
  12. Article
  13. Assessing the quality of decision-making for planned oocyte cryopreservation.Journal of assisted reproduction and genetics · 2021
    Article
  14. Article
  15. Knowledge about the impact of age on fertility: a brief review.Upsala journal of medical sciences · 2020
    Review
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 9 institutions in 2 countries.

Marcia C InhornDepartment of Anthropology, Yale University, 10 Sachem Street, New Haven, CT, 06520, USA. marcia.inhorn@yale.edu.ORCID http://orcid.org/0000-0001-7456-7120
Daphna Birenbaum-CarmeliDepartment of Nursing, University of Haifa, 3498838, Haifa, Israel.
Lynn M WestphalStanford Fertility and Reproductive Medicine Center, Stanford University, 1195 W. Fremont Ave, Sunnyvale, CA, 94087, USA.
Joseph DoyleShady Grove Fertility, 9600 Blackwell Road, Rockville, MD, 20850, USA.
Norbert GleicherCenter for Human Reproduction, 21 E. 69th Street, New York, NY, 10021, USA.
Dror MeirowDivision Reproductive Endocrinology-IVF, Department of Obstetrics & Gynecology, Carmel Medical Center, Ruth & Bruce Faculty of Medicine, Technion, 3436212, Haifa, Israel.
Martha DirnfeldClinical Center for Fertility Preservation and Fertility Preservation Research Laboratory, Department of Obstetrics and Gynecology, Sheba Medical Center, IVF and Fertility Unit, 1 Emek Ha'ella St, 52621, Ramat Gan, Israel.
Daniel SeidmanDepartment of Obstetrics and Gynecology, Sheba Medical Center, IVF and Fertility Unit, 1 Emek Ha'ella St, 52621, Ramat Gan, Israel.
Arik KahaneAssuta Medical Center, 13 Eliezer Mazal, 75653, Rishoon Lezion, Israel.
Pasquale PatrizioYale Fertility Center, Yale University, 150 Sargent Drive, New Haven, CT, 06511, USA.
Sheba Medical Center · ILAssuta Medical Center · ILCarmel Medical Center · ILCenter for Human Reproduction · USShady Grove Fertility Center · USStanford Medicine · USUniversity of Haifa · ILYale Cancer Center · USYale University · US

Funding

Yale Clinical and Translational Science Award (U Component)UL1TR001863 · NCATS · YALE UNIVERSITY · PI John H. Krystal, LUCILA OHNO-MACHADO · 2016 to 2026
$102.9M
NCATS NIH HHS UL1 TR001863US National Science Foundation BCS-1356136Wellcome Trust 209829/Z/17/Z
6 · The paper itself

Abstract

purposeHow can elective egg freezing (EEF) be made patient centered? This study asked women to reflect on their experiences of EEF, which included their insights and recommendations on the optimal delivery of patient-centered care.

methodsIn this binational, qualitative study, 150 women (114 in the USA, 36 in Israel) who had completed at least one cycle of EEF were recruited from four American IVF clinics (two academic, two private) and three in Israel (one academic, two private) over a two-year period (June 2014-August 2016). Women who volunteered for the study were interviewed by two medical anthropologists. Interviews were audio recorded, transcribed, and entered into a qualitative data management program (Dedoose) for analysis.

resultsThe majority (85%) of women were without partners at the time of EEF, and thus were undertaking EEF alone in mostly couples-oriented IVF clinics. Following the conceptual framework known as "patient-centered infertility care," we identified two broad categories and eleven specific dimensions of patient-centered EEF care, including (1) system factors: information, competence of clinic and staff, coordination and integration, accessibility, physical comfort, continuity and transition, and cost and (2) human factors: attitude and relationship with staff, communication, patient involvement and privacy, and emotional support. Cost was a unique factor of importance in both countries, despite their different healthcare delivery systems.

conclusionsSingle women who are pursuing EEF alone in the mostly couples-oriented world of IVF have distinct and multifaceted needs. IVF clinics should strive to make best practices for patient-centered EEF care a high priority.

Indexed as

Patient-Centered CareAdultCryopreservationFemaleFertility PreservationHumansInfertilityOvumQuality of Health CareUnited StatesElective egg freezingFertility preservationIsraelPatient-centered careUnited States

Identifiers

PMID31104290
PMCPMC6603102
OpenAlexW2945160585

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.