ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2020
Change Over Time in Caregiving Networks for Older Adults With and Without Dementia.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 73 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
73 citing papers in PubMed, 1 synthesis or guideline pooled it, 95 citations in OpenAlex.
- Understanding how informal dementia caregiver networks are assessed in the literature: results from a scoping review.Frontiers in dementia · 2026Pooled it
- Two-year follow-up of dementia caregivers after a digital health intervention WECARE: a mixed-method study.Aging & mental health · 2025Trial
- Community health workers supporting diverse family caregivers of persons with dementia: Preliminary qualitative results from a randomized home-based study.Dementia (London, England) · 2025Trial
- The dementia care study (D-CARE): Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Trial
- Friend Caregivers Among Older Adults.JAMA network open · 2026Article
- Kinship, gender, and the social networks of caregivers for older adults.The Gerontologist · 2026Article
- The Impact of Dementia Caregiving on the Health of the Spousal Caregiver.Medicina (Kaunas, Lithuania) · 2026Review
- Beliefs about Levels of Care Responsibility for Older Adults in Need: Differences by Relationship and the Presence of Dementia.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2026Article
- Caregivers serving as confidants: relationship correlates and well-being by care-recipients' dementia status.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Article
- Racial and Ethnic Differences in Caregiving Networks and Unmet Care Needs Among People Living With Cognitive Impairment.Research on aging · 2026Article
- Dementia Severity Associated With Unmet Caregiving Needs During Skilled Home Health Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Care network types and depression among people with cognitive impairment: A latent class analysis.PloS one · 2026Article
- Family Caregiver Experiences Coordinating Care of Older Adults.JAMA network open · 2025Article
- Factors Associated With Shifts in Caregiving During COVID-19.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Evolution of shared care networks by race and ethnicity: findings from the National Health and Aging Trends Study.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- Caregiving network precarity among community-living, dually enrolled persons with dementia.The Gerontologist · 2025Article
- Geographic Proximity of Family Members and the Provision of Unpaid and Paid Care for Older Adults Not Living With a Spouse: A Cross-Sectional Study.Health science reports · 2025Article
- Nearly 4 in 10 extended families of older adults in the United States include an older relative with dementia.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Older adults' care networks and the pathways to unmet needs.Innovation in aging · 2025Article
- Mapping the Trajectories of Social Relations for White, Black, and Hispanic/Latino Individuals Approaching Death With Dementia.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
13 more citing papers are in PubMed but not listed here.
Corrections and comments
- Erratum issued
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
objectivesWe provide national estimates of caregiving networks for older adults with and without dementia and examine how these networks develop over time. Most prior research has focused on primary caregivers and rarely on change over time.
methodWe identify a cohort of older adults continuously followed in the National Health and Aging Trends Study between 2011 and 2015 and receiving help from family members or unpaid caregivers in 2015 (n = 1,288). We examine differences by dementia status in network size, types of assistance and task sharing, and composition-differentiating between "specialist" and "generalist" caregivers helping in one versus multiple activity domains. Multinomial regression is used to estimate change over time in network task sharing and composition.
resultsIn 2015, older adults with dementia had larger caregiving networks involving more task sharing than those without dementia and more often relied on generalist caregivers, especially the subset assisting with medical, household, and mobility or self-care activities. Uniformly greater reliance over time on these more intensely engaged generalist caregivers chiefly accounts for larger dementia networks. DISCUSSION: Findings lend support to the need for caregiver training on managing multiple task domains and-for dementia caregivers in particular-task-sharing skills. More generally, the design of new approaches to better support older adults and their caregivers should consider the complexity, heterogeneity, and change over time in caregiving networks.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.