ArticleBMJ open2019
How do patients from South Asian backgrounds experience life on haemodialysis in the UK? A multicentre qualitative study.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it, 24 citations in OpenAlex.
- Social Isolation and Loneliness in People Living With Chronic Kidney Disease and Kidney Failure: A Mixed Method Systematic Review.Journal of renal care · 2026Pooled it
- Lived experiences of people with chronic kidney disease on maintenance dialysis: a systematic review and thematic synthesis of qualitative studies.BMC nephrology · 2025Pooled it
- Experiences of hemodialysis in patients with end-stage renal disease: a patient journey map based on a qualitative study.BMC nephrology · 2026Article
- Living with haemodialysis in Sri Lanka: a qualitative study on patient adaptation and care perceptions.BMC nephrology · 2026Article
- The relationship between flourishing, social support, and regulatory emotional self-efficacy in maintenance hemodialysis patients: a network analysis.BMC psychiatry · 2025Article
- Understanding people's decisions when choosing or declining a kidney transplant: a qualitative evidence synthesis.BMJ open · 2023Article
- Lived Experiences of Patients on Hemodialysis Treatment at Kiruddu National Referral Hospital: A Phenomenological Study.Patient related outcome measures · 2023Article
- The use of culturally adapted and translated depression screening questionnaires with South Asian haemodialysis patients in England.PloS one · 2023Article
- Patients' experience of undergoing maintenance hemodialysis. An interview study from Ethiopia.PloS one · 2023Article
- Palliative Care in Patients with End-Stage Renal Disease: A Meta Synthesis.International journal of environmental research and public health · 2021Article
- Patient perspectives of target weight management and ultrafiltration in haemodialysis: a multi-center survey.BMC nephrology · 2021Article
- Chronic drug treatment among hemodialysis patients: a qualitative study of patients, nursing and medical staff attitudes and approaches.BMC nephrology · 2020Article
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Authors and funding
10 authors at 6 institutions in 1 country.
Funding
Abstract
objectivesEnd-stage kidney disease disproportionately affects people of South Asian origin. This study aimed to uncover the lived experiences of this group of patients on centre-based haemodialysis (HD), the most prevalent dialysis modality.
designThe study utilised a qualitative focus group methodology. Seven focus groups were conducted across four NHS Trusts in the UK including three in Gujarati and two each in Punjabi and Urdu. This provided an inclusive opportunity for South Asian patients to contribute in their language of origin. A total of 24 patients participated. Focus groups were facilitated by bilingual project workers and data were forward translated and analysed using thematic analysis.
resultsFour themes were identified. This included (1) 'treatment imposition', which comprised of the restrictive nature of HD, the effects of treatment and the feeling of being trapped in an endless process. (2) The 'patient-clinician relationship' centred around the impact of a perceived lack of staff time, and inadequacies in the quality of interactions. (3) 'Coping strategies' highlighted the role of cognitive reappraisal, living in the moment and family support networks in facilitating adjustment. (4) 'Pursuit of transplantation' included equating this form of treatment with restoring normality, alongside cultural factors limiting hopefulness for receiving an organ.
conclusionsIn general, the experiences of South Asian patients receiving HD were not unique to this ethnic group. We did find distinct issues in relation to interactions with healthcare professionals, views on access to transplantation and the importance of family support networks. The study provides useful insights which may help enhance culturally tailored renal care.
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