ArticlePediatric blood & cancer2019
Transitional care practices, services, and delivery in childhood cancer survivor programs: A survey study of U.S. survivorship providers.
Article in Pediatric blood & cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Transition from pediatric to adult follow-up care in childhood cancer survivors-a systematic review.Journal of cancer survivorship : research and practice · 2021Pooled it
- Transition outcomes in a diverse cohort of higher-risk young adult survivors of childhood cancer in an established care model.Journal of cancer survivorship : research and practice · 2026Article
- Availability of cancer survivorship services for adolescents and young adults: Findings from the 2022 NCI Community Oncology Research Program Landscape Assessment.Journal of cancer survivorship : research and practice · 2026Article
- Cohort Profile: The Adolescent and Young Adult Tracking Engagement and Management Skills (AYA TEAMS) Longitudinal Cohort of Childhood Cancer Survivors in the United States.medRxiv : the preprint server for health sciences · 2026Article
- Building a framework for adolescent and young adult transition of care for patients with neurofibromatosis type 1 and neurofibromatosis type 2-related schwannomatosis syndromes.Frontiers in oncology · 2026Review
- Barriers and Enablers to Engaging with Long-Term Follow-Up Care Among Canadian Survivors of Pediatric Cancer: A COM-B Analysis.Current oncology (Toronto, Ont.) · 2025Article
- Accessibility of and Barriers to Long-Term Follow-Up Care for Childhood Cancer Survivors.JAMA network open · 2024Article
- Cancer Survivorship Care in the United States at Facilities Accredited by the Commission on Cancer.JAMA network open · 2024Article
- Children with Cancer: Shared Care and Transition of Care.Indian journal of pediatrics · 2023Review
- Current Status and Physicians' Perspectives of Childhood Cancer Survivorship in Korea: A Nationwide Survey of Pediatric Hematologists/Oncologists.Journal of Korean medical science · 2023Article
- Transition practices for survivors of childhood cancer: a report from the Children's Oncology Group.Journal of cancer survivorship : research and practice · 2023Article
- A Scoping Review Exploring Access to Survivorship Care for Childhood, Adolescent, and Young Adult Cancer Survivors: How Can We Optimize Care Pathways?Adolescent health, medicine and therapeutics · 2023Review
- The current state of adult metabolic medicine in the United States: Results of a nationwide survey.Genetics in medicine : official journal of the American College of Medical Genetics · 2022Article
- Late Effects After Haematopoietic Stem Cell Transplantation in ALL, Long-Term Follow-Up and Transition: A Step Into Adult Life.Frontiers in pediatrics · 2021Review
- Current and coming challenges in the management of the survivorship population.Seminars in oncology · 2020Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
purposeThere are limited reports describing transition of young adult childhood cancer survivors (CCS) from pediatric to adult-focused survivorship care. The purpose of this study was to characterize current transitional care practices in the United States. PROJECT DESCRIPTION: An online survey was sent to one preselected respondent at 163 Children's Oncology Group member institutions in the United States. Data were collected about (i) the availability and type of long-term follow-up services for adult CCS and (ii) policies and procedures for transitioning. Logistic regression was used to evaluate factors related to care for CCS.
resultsThe response rate was 60% (97/163). Eighty-one respondents (84%) represented centers with specialized pediatric-focused CCS programs. Thirty-nine percent (38/97) of programs delivered specialized transitional care for adult CCS. Adult-centered care was delivered in both pediatric (39%, 15/38) and adult oncology clinics (39%, 15/38). The most common perceived transition barriers were lack of available partnering adult providers and adult providers' lack of knowledge regarding CCS. The larger the program in terms of new diagnoses, the more likely they were to offer formal transitional care (<50 vs >200: odds ratios [OR] 20.0; 95% CI 3.2, 100.0, P = 0.004).
conclusionsA variety of models are utilized for delivering care to adult CCS. Our results suggest that interventions to establish effective partnerships with adult providers on appropriate care of CCS may facilitate expanded availability of these services.
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