Evidence map›Paper›PMID 31094208›Full record

ArticleAutism : the international journal of research and practice2020

Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia.

Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Rehana Abdurahman, Markos Tesfaye, Zemi Yenus, WHO CST Team, Erica Salomone, Laura Pacione, Abebaw Fekadu and 3 more

Abstract readEvaluation Study
In one paragraph

Article in Autism : the international journal of research and practice, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
46citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

46 citing papers in PubMed, 5 syntheses or guidelines pooled it.

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  20. Pepea Pamoja:Child: care, health and development · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Bethlehem TekolaKing's College London, UK.
Fikirte GirmaAddis Ababa University, Ethiopia.
Mersha KinfeAddis Ababa University, Ethiopia.
Rehana AbdurahmanYekatit 12 Hospital Medical College, Ethiopia.
Markos TesfayeSt. Paul's Hospital Millennium Medical College, Ethiopia.
Zemi YenusJoy Center for Children with Autism, Ethiopia.
WHO CST TeamWorld Health Organization, Switzerland.
Erica SalomoneWorld Health Organization, Switzerland.ORCID 0000-0002-8083-5942
Laura PacioneWorld Health Organization, Switzerland.
Abebaw FekaduKing's College London, UK.
Chiara ServiliWorld Health Organization, Switzerland.
Charlotte HanlonKing's College London, UK.
Rosa A HoekstraKing's College London, UK.ORCID 0000-0002-1333-9762

Funding

Department of HealthMedical Research Council MR/M025470/1Medical Research Council MR/P020844/1Wellcome TrustWorld Health Organization 001
6 · The paper itself

Abstract

The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide.

Indexed as

AdultAutistic DisorderCaregiversChildChild, PreschoolDeveloping CountriesEthiopiaEvaluation Studies as TopicFeasibility StudiesFemaleHumansInterviews as TopicMaleProgram EvaluationWorld Health Organizationcaregiversdevelopmental delaydevelopmental disordersEthiopiaparenting skills programmeparent-mediatedqualitative

Identifiers

PMID31094208
PMCPMC6927066

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.