ArticleThe European journal of health economics : HEPAC : health economics in prevention and care2019
The burden of informal caregiving in Hungary, Poland and Slovenia: results from national representative surveys.
Article in The European journal of health economics : HEPAC : health economics in prevention and care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed.
- Care-related burden and quality of life among informal caregivers for older adults: a cross-sectional study.BMC public health · 2026Article
- The value of social robots supporting informal care: a discrete choice experiment among informal caregivers.The European journal of health economics : HEPAC : health economics in prevention and care · 2026Article
- Deterioration of health-related quality of life: the hidden health burden of informal caregiving.The European journal of health economics : HEPAC : health economics in prevention and care · 2025Article
- Time value of informal care of people with alzheimer's disease in Spain: a population-based analysis.The European journal of health economics : HEPAC : health economics in prevention and care · 2025Article
- The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study.Journal of clinical medicine · 2025Review
- Attributes Desired in a General Practitioner by Adults: Implications for Humanization in Medicine and Enhancement of the Patient Experience.Healthcare (Basel, Switzerland) · 2024Article
- Childhood Adversities and Caregiving for Older Parents: Building Capacity for a Caring Society.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024Article
- Rare diseases: still on the fringes of universal health coverage in Europe.The Lancet regional health. Europe · 2024Review
- Patient-reported outcomes measure for patients with cleft palate.Frontiers in public health · 2024Review
- Labor supply and informal care responses to health shocks within couples: Evidence from the UK.Health economics · 2022Article
- What does it mean to be the main caregiver to a terminally ill family member in Lithuania?: A qualitative study.PloS one · 2022Article
- Cost analysis of informal care: estimates from a national cross-sectional survey in Sweden.BMC health services research · 2021Article
- Study of the association between generic and disease-specific quality of life and behavior problems in pediatric patients with chronic kidney disease stage 3 or higher and the quality of life and mental health of their primary caregivers.Pediatric nephrology (Berlin, Germany) · 2021Article
- Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature.Health and quality of life outcomes · 2021Review
- The effect of socioeconomic status on informal caregiving for parents among adult married females: evidence from China.BMC geriatrics · 2021Article
- Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- The effect of long-term care public benefits and insurance on informal care from outside the household: empirical evidence from Italy and Spain.The European journal of health economics : HEPAC : health economics in prevention and care · 2020Article
- Development of Population Tariffs for the CarerQol Instrument for Hungary, Poland and Slovenia: A Discrete Choice Experiment Study to Measure the Burden of Informal Caregiving.PharmacoEconomics · 2020Article
- Perceptions of Stress and Engagement in High-Intensity Caregiving: A Cross-Sectional Study in Lithuania.Inquiry : a journal of medical care organization, provision and financingArticle
- Emotional disorders evidenced by family caregivers of older people with Alzheimer's disease.Dementia & neuropsychologiaArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWe aimed to investigate the burden of informal care in Hungary (HU), Poland (PL) and Slovenia (SI).
methodsA cross-sectional online survey was performed involving representative samples of 1000 respondents per country. Caregiving situations were explored; health status of informal caregivers/care recipients and care-related quality of life were assessed using the EQ-5D-5L and CarerQol-7D.
resultsThe proportion of caregivers was (HU/PL/SI) 14.9, 15.0 and 9.6%, respectively. Their mean age was 56.1, 45.6 and 48.0, and the average time spent on informal care was 27.6, 35.5 and 28.8 h/week. Chronic care was dominant (> 1 year: 78.5%, 72.0%, 74.0%) and care recipients were mainly (own/in-law) parents. Average EQ-5D-5L scores of care recipients were 0.53, 0.49 and 0.52. For Poland and Slovenia, EQ-5D-5L scores of informal care providers were significantly lower than of other respondents. Average CarerQol-7D scores were (HU/PL/SI) 76.0, 69.6 and 70.9, and CarerQol-VAS was 6.8, 6.4 and 6.6, respectively. Overall, 89, 87, and 84% of caregivers felt some or a lot fulfilment related to caring. Problems with combining tasks with daily activities were most important in Hungary and Slovenia. Women had a higher probability of being a caregiver in Hungary. CarerQol-7D scores were significantly associated with caregivers' EQ-5D-5L scores. In Hungary and Poland, living in a larger household was positively, while caring for patients with mental health problems was negatively associated with CarerQol-7D scores.
conclusionsThese first results from the Central and Eastern European region using preference-based measures for the evaluation of informal care can serve as a valuable input for health economic analyses.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.