ArticlePloS one2019
Facilitating public and patient involvement in basic and preclinical health research.
Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed.
- Trial
- A case study of patient and public involvement in sepsis genomics research.Research involvement and engagement · 2026Article
- Expert Consensus and Clinical Pathway Recommendations for Transthyretin Amyloid Cardiomyopathy in Malaysia.International journal of heart failure · 2026Review
- Engaging patient communities in intracranial neuroscience research.medRxiv : the preprint server for health sciences · 2026Article
- From input to impact: embedding PPI in computational ovarian cancer research.Research involvement and engagement · 2026Article
- Perspectives of consumer involvement in pre-clinical musculoskeletal research: a cross-sectional survey of consumers and community members.Rheumatology advances in practice · 2026Article
- Identifying challenges and enablers to engaging patients in preclinical laboratory research: an interview study.Research involvement and engagement · 2025Article
- Targeting everyday decision makers in research: early career researcher and patient and public involvement and engagement collaboration in an AI-in-healthcare project.Research involvement and engagement · 2025Article
- Frameworks Used to Engage Postsecondary Students in Campus Mental Health Research: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Patient and public involvement in basic and clinical psychiatric research: a scoping review of reviews.BMC psychiatry · 2025Article
- Translation of PET radiotracers for cancer imaging: recommendations from the National Cancer Imaging Translational Accelerator (NCITA) consensus meeting.BMC medicine · 2025Article
- Review
- Article
- The Development of Principles for Patient and Public Involvement (PPI) in Preclinical Spinal Cord Research: A Modified Delphi Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Patient and public involvement and engagement (PPIE): how valuable and how hard? An evaluation of ALL_EARS@UoS PPIE group, 18 months on.Research involvement and engagement · 2024Article
- Protocol for co-producing a framework and integrated resource platform for engaging patients in laboratory-based research.Research involvement and engagement · 2024Review
- Patient and public involvement in preclinical and medical research: Evaluation of an established programme in a Discovery-Based Medical Research Institute.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Perspectives of researchers and clinicians on patient and public involvement (PPI) in preclinical spinal cord research: An interview study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Development and evaluation of a stroke research Public Patient Involvement Panel.HRB open research · 2024Article
- The role of Patient and public involvement (PPI) in pre-clinical spinal cord research: An interview study.PloS one · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Involving patients in research broadens a researcher's field of influence and may generate novel ideas. Preclinical research is integral to the progression of innovative healthcare. These are not patient-facing disciplines and implementing meaningful public and patient involvement (PPI) can be a challenge. A discussion forum and thematic analysis identified key challenges of implementing public and patient involvement for preclinical researchers. In response we developed a "PPI Ready" planning canvas. For contemporaneous evaluation of public and patient involvement, a psychometric questionnaire and an open source tool for its evaluation were developed. The questionnaire measures information, procedural and quality assessment. Combined with the open source evaluation tool, researchers are notified if public and patient involvement is unsatisfactory in any of these areas. The tool is easy to use and adapts a psychometric test into a format familiar to preclinical scientists. Designed to be used iteratively across a research project, it provides a simple reporting grade to document satisfaction trend over the research lifecycle.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.