ArticleAmerican journal of ophthalmology2019
Caregiver Burden in Primary Congenital Glaucoma.
Article in American journal of ophthalmology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 30 citations in OpenAlex.
- Pooled it
- A systematic review of clinical practice guidelines for childhood glaucoma.BMJ open ophthalmology · 2022Pooled it
- Association of primary congenital glaucoma with quality of life in children and their families.Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie · 2026Article
- Article
- Uncovering the Novel Genetic Determinants of Primary Congenital Glaucoma in Pakistani Families.Human mutation · 2026Article
- Caregiver-Reported Stressors Involved in Caring for a Child with Optic Nerve Hypoplasia.Clinical ophthalmology (Auckland, N.Z.) · 2026Article
- Emotional and Caregiver Burden in Adults with Glaucoma-Related Blindness at a Chinese Tertiary Center.Clinical ophthalmology (Auckland, N.Z.) · 2026Article
- Caregivers' burden and its influencing factors among parents of children with asthma and comorbidities: a cross-sectional study.Frontiers in public health · 2025Article
- Experiences of burden and needs in caregivers with pediatric noninfectious uveitis: a qualitative study.BMC nursing · 2024Article
- [Catastrophic expenditure in children with visual impairment: a cross-sectional study with caregivers in Rio de Janeiro, Brazil].Cadernos de saude publica · 2024Article
- The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature.Eye (London, England) · 2023Review
- Medication Adherence and Common Barriers for Caregivers of Preschool Children with Pediatric Glaucoma.Journal of ophthalmology · 2022Article
- Article
- A Service Coverage Analysis of Primary Congenital Glaucoma Care Across the United States.American journal of ophthalmology · 2021Article
- Severity of visual field defects in primary congenital glaucoma and their risk factors.Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie · 2020Observational
- Non-Penetrating Deep Sclerectomy versus Trabeculectomy in Primary Congenital Glaucoma.Clinical ophthalmology (Auckland, N.Z.) · 2020Article
Corrections and comments
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Authors and funding
8 authors at 4 institutions in 3 countries.
Funding
Abstract
purposeTo evaluate the demographic, clinical, and socioeconomic factors associated with variation in the quality of life (QOL) in caregivers of children with primary congenital glaucoma (PCG) in south India.
designCross-sectional survey.
methodsCaregivers of children younger than 18 with diagnosed PCG were prospectively enrolled at Aravind Eye Hospital in Madurai and Coimbatore, India. Participants completed 2 questionnaires, the PHQ-9 (9-item Patient Health Questionnaire) and the CarCGQoL (Caregivers Congenital Glaucoma QOL Questionnaire). Clinical, demographic, and socioeconomic data were obtained for each child-caregiver dyad. Rasch-calibrated scores were calculated for patient-reported outcome measures. Spearman correlation and linear regression were used to analyze data to determine associations with caregiver QOL.
resultsThere were 70 caregivers (mean age 32.1, 77.1% female) of 70 children with PCG (mean age 7.7, 37.1% female) included in the study. In univariate and multivariable analyses, child's age (β = -0.04; 95% confidence interval, -0.08 to -0.01) and duration of disease (β = - 0.03; 95% confidence interval, -0.07 to -0.01) were the only factors associated with CarCGQoL. Survey items related to anger, self-confidence, irritability, appetite, and interest in leisure activities had the lowest scores. There was a negative correlation between CarCGQoL and PHQ-9 scores (r = -0.66, P < .01), indicating that worse caregiver QOL was significantly correlated with more depressive symptoms.
conclusionThis study identified traits associated with QOL decline, as well as the QOL issues most likely to affect caregivers of children with PCG in south India. Findings from this study may be important for designing interventions to improve caregivers' QOL, thereby maximizing their ability to care for children with PCG.
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