ArticleChild's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery2019
The role of social media in selective dorsal rhizotomy for children: information sharing and social support.
Article in Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
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Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Implementation of Social Media in Neurosurgery: A Systematic Review of the Literature.Acta neurochirurgica · 2025Pooled it
- Pooled it
- YouTube as a Source of Patient Information for Cerebral Palsy.Healthcare (Basel, Switzerland) · 2025Article
- Missing the message to brain tumor patients: a 2023 twitter analysis among patients, informal caregivers, and healthcare professionals in glioblastoma multiforme.Journal of neuro-oncology · 2025Article
- Parenting Information on Social Media: Systematic Literature Review.JMIR pediatrics and parenting · 2024Review
- Strengthening Equitable Access to Care and Support for Children with Cerebral Palsy and Their Caregivers.Children (Basel, Switzerland) · 2023Article
- Cervical Myelopathy and Social Media: Mixed Methods Analysis.Journal of medical Internet research · 2023Article
- Social media insights for neurosurgical oncologists: a survey of the American Association of Neurological Surgeons and Congress of Neurological Surgeons Joint Section on Tumors.Journal of neuro-oncology · 2023Article
- Developmental Dysplasia of the Hip: How Does Social Media Influence Patients and Caregivers Seeking Information?Children (Basel, Switzerland) · 2021Article
- Nerve transfer surgery in spinal cord injury: online information sharing.BMC neurology · 2021Article
- The role of social media in clubfoot: information sharing and social support.Journal of children's orthopaedics · 2021Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeSelective dorsal rhizotomy (SDR) is a surgical treatment for spasticity, primarily in cerebral palsy (CP). There is a growing trend for patients to seek medical information from their peers on social media platforms. This study qualitatively and quantitatively assessed the use of social media as an information-sharing and support-seeking tool by patients and caregivers.
methodsA search was performed on Facebook, Twitter, and YouTube. Public information was quantitatively assessed by category, users, year of creation, and country of origin. Representative samples of comments and posts were then qualitatively assessed by thematic analysis.
resultsOne hundred eighty-five Facebook groups and pages, 97 YouTube videos, and 14 Twitter accounts were identified, based in 13 countries. SDR and CP groups had a mean membership of 3063 and 2339, respectively; SDR and CP pages had a mean number of "likes" of 1650 and 10,711, respectively. Total YouTube video views were 593,135 (mean 6115). Total Twitter followers were 62,609 (mean 2160). Qualitative analysis identified seven categories of comments: emotional support and forming connections (22.34%), sharing information and advice (15.96%), appreciation and successes (31.91%), challenges and difficulties (8.51%), advertising/offering services (4.79%), inequities and access (4.79%), and social media as a second opinion (11.7%).
conclusionsThis study outlines the use of social media platforms in the distribution of information regarding SDR. We highlight the importance placed by patients and caregivers on the advice of their peers. The current report should inform healthcare providers' interactions with patients with respect to information seeking and provision of support.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.