ReviewJournal of the American Geriatrics Society2019
Family Caregiving in Serious Illness in the United States: Recommendations to Support an Invisible Workforce.
Review in Journal of the American Geriatrics Society, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed.
- Feasibility of a digital palliative care intervention (Convoy-Pal) for older adults with heart failure and multiple chronic conditions and their caregivers: a waitlist randomized control trial.BMC palliative care · 2024Trial
- Friend Caregivers Among Older Adults.JAMA network open · 2026Article
- Social media use facilitating family caregivers' positive aspects of caregiving: a perspective of media system dependency.BMC geriatrics · 2026Article
- Experience of family caregivers of breast cancer-related lymphedema patients participating in lymphedema management: a phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Burden and quality of life among caregivers of children diagnosed with cancer at Kenyatta National Hospital, Kenya: A cross-sectional study.Palliative care and social practice · 2026Article
- Inpatient Palliative Care and Post-operative Healthcare Utilization Among Older Surgical Patients.Annals of surgery · 2025Article
- Equipping Change Agents: Applying Mixed Methods to Learn About the Outcomes of the Co-Designed Caregiver-Centered Care Champions Education Program.International journal of environmental research and public health · 2025Article
- Family caregivers' perspectives on caring for mentally ill adult patients in tertiary hospital in Khyber Pakhtunkhwa, Pakistan.Pakistan journal of medical sciences · 2025Article
- Caregiving Trajectories and Unmet Care Needs in Later Life.The Gerontologist · 2025Article
- Perceived helpfulness of caregiver support resources: Results from a state-wide poll.PEC innovation · 2024Article
- Understanding Dementia Carer Experiences Before Admission to a Residential Aged Care Facility: Implications for Integrated Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024Article
- The Saskatchewan Caregiver Experience Study: Support Priorities of Caregivers of Older Adults.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024Article
- Using Social Convoy Theory to Identify and Recruit Caregivers of Older Adults with Serious Illness for Palliative Care Research: A Comparative Analysis.Journal of palliative medicine · 2024Article
- Validating interRAI Chinese self-reported carer needs (SCaN) assessment and predicting caregiving distress among informal Chinese caregivers of older adults.BMC geriatrics · 2024Article
- Article
- Exploring the Lived Experiences of Caregiving for Older Family Members by Young Caregivers in Singapore: Transition, Trials, and Tribulations.International journal of environmental research and public health · 2024Article
- Article
- Prevalence of unpaid caregiving, pain, and depression in older seriously ill patients undergoing elective surgery.Journal of the American Geriatrics Society · 2023Article
- Qualitative study exploring heterogeneity in caregiving experiences post-stroke in Singapore.BMJ open · 2023Article
- Caregiving Across the Life Course: A Health Policy Priority for North Carolina.North Carolina medical journal · 2023Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Family caregivers provide the vast majority of care for individuals with serious illness living in the community but are not often viewed as full members of the healthcare team. Family caregivers are increasingly expected to acquire a sophisticated understanding of the care recipient's condition and new skills to execute complex medical or nursing tasks, often without adequate preparation and support, and with little choice in taking on the role. This review draws on peer-reviewed literature, government reports, and other publications to summarize the challenges faced by family caregivers of older adults in the context of serious illness and to identify opportunities to better integrate them into the healthcare workforce. We discuss promising approaches such as inclusion of family caregivers in consensus-based practice guidelines; the "no wrong door" function, directing consumers to needed resources, regardless of where initial contact is made; and caregiver-friendly workplace policies allowing flexible arrangements. We present specific recommendations focusing on research, clinical practice, and policy changes that promote family-centered care and improve outcomes for caregivers as well as persons with serious illness. J Am Geriatr Soc 67:S451-S456, 2019.
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31074854What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.