ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2020
Perspectives from oncology patient navigation programs on information management practices and needs: a descriptive study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- Supporting Patients With Breast Cancer and Providers Through Treatment and Survivorship: Multimethod Implementation Study of the MyJourney Platform.JMIR cancer · 2026Article
- Developing a real-time registry to track breast cancer patients across the city of Boston.JAMIA open · 2025Article
- An exploration of facilitators and barriers to patient navigator core functions with breast cancer patients: Implications for the development of a human-centered mHealth app.PEC innovation · 2023Article
- Patient Navigation Programs in Canada for People With Dementia, Their Caregivers and Care Providers: An Environmental Scan.Sage open agingArticle
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Authors and funding
4 authors.
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Abstract
purposeThe purposes of this study are to describe oncology patient navigation (PN) program perspectives on: (1) use of information systems and processes, (2) uses of program data, and (3) desired information system characteristics.
methodsWe conducted multi-phase data collection to inform development of the Patient Navigation Barriers and Outcomes Tool™ (PN-BOT™), a new information management and reporting tool for oncology PN programs. Phase I was a national online survey of PN staff (n = 343) about data practices. Phase II was a pilot test of a PN-BOT™ prototype with nine PN programs. Survey results were tabulated. Qualitative analysis identified emergent themes from open-response fields from the Phase I survey and open-response survey and interview data from Phase II pilot testers.
resultsPN program information management practices and systems were diverse and often leveraged a patchwork of untailored platforms. Navigators used data to inform navigation tasks, service improvement, research, and reporting. Respondents desired a streamlined, integrated, affordable data system able to minimize data entry burden, meet needs of diverse stakeholders, facilitate navigation work, readily generate reports, and share information among healthcare team members.
conclusionsAlthough oncology navigation programs explore diverse solutions, programs struggle to find health information technologies that sufficiently meet their needs. Information systems designed for oncology PN programs should perform a wide range of functions: be customizable, affordable, interoperable, and have low data entry burden. Organizations exploring solutions should invite PN input in decisions. PN-BOT™ was developed as a free Excel-based tool for PN programs responsive to reported needs.
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