Evidence map›Paper›PMID 31071425›Full record

ArticleJournal of pain and symptom management2019

Preparing Older Patients With Serious Illness for Advance Care Planning Discussions in Primary Care.

Nebras Abu Al Hamayel, Sarina R Isenberg, Joshua Sixon, Katherine Clegg Smith, Samantha I Pitts, Sydney M Dy, Susan M Hannum

Abstract read
In one paragraph

Article in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Trial
  4. Article
  5. Attitudes to earlier advance care planning: a qualitative interview study in general practice.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026
    Article
  6. Article
  7. Review
  8. Article
  9. Article
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  13. Advance Care Planning Needs in Idiopathic Pulmonary Fibrosis: A Qualitative Study.The American journal of hospice & palliative care · 2022
    Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Nebras Abu Al HamayelDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland. Electronic address: nabualh1@jhu.edu.
Sarina R IsenbergTemmy Latner Centre for Palliative Care and Lunenfeld Tanenbaum Research Institute, Sinai Health System, Toronto, Ontario, Canada; Department of Family and Community Medicine, University of Toronto, Toronto, Ontario, Canada.
Joshua SixonDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland.
Katherine Clegg SmithDepartment of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Samantha I PittsDepartment of Medicine, Johns Hopkins School of Medicine, Baltimore, Maryland, USA.
Sydney M DyDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland.
Susan M HannumDepartment of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.

Funding

Evaluation of Implementation of Point-of-Care Palliative Care Quality MeasuresR21CA197362 · NCI · JOHNS HOPKINS UNIVERSITY · PI DY, SYDNEY MORSS · 2016 to 2017
$388k
CIHR 146181NCI NIH HHS R21 CA197362
6 · The paper itself

Abstract

contextLittle is known about how to prepare older patients for advance care planning (ACP) discussions in primary care.

objectivesThe objective of the study was to explore older patients' perspectives and experiences on ACP discussions with family members and/or primary care clinicians.

methodsWe conducted a qualitative interview study with 20 older patients who were involved in the clinic's ACP quality improvement initiative. We used an inductive approach to generate a coding scheme and used thematic analysis alongside a constant comparative methodology to iteratively refine emergent themes after coding the data. We used the transtheoretical behavior change model to conceptualize the process of ACP discussions, focusing on the contemplation, preparation, and action stages.

resultsFour key themes emerged from our analyses: 1) the relevance/importance of ACP as a whole; 2) independently conceptualizing wishes and preferences for the future; 3) the process of engagement in ACP discussions; and 4) different outcomes of ACP discussions. While patients contemplated having an ACP discussion, they needed time to conceptualize their wishes on their own before documenting wishes or engaging with others. Moving to the preparation stage, patients shared their perspectives about how to engage family members and primary care clinicians in ACP discussions and reported different outcomes of these discussions, which varied according to patients' goals for ACP.

conclusionUnderstanding how to best prepare patients for ACP discussions from patients enrolled in an ACP primary clinic quality improvement initiative may assist primary care practices in developing interventions to improve the occurrence and effectiveness of such discussions.

Indexed as

Advance Care PlanningAdvance DirectivesPatient PreferencePrimary Health CareAgedFemaleHumansMalePhysician-Patient RelationsQualitative ResearchAdvance care planningadvance care planning discussionsadvance directivespatient-centered communicationprimary carequalitative research

Identifiers

PMID31071425
PMCPMC6679788

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.