ArticleDigital health
'I'd like to think you could trust the government, but I don't really think we can': Australian women's attitudes to and experiences of My Health Record.
Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 33 citations in OpenAlex.
- Researchers' perceptions of the trustworthiness, for reuse purposes, of government health data in Victoria, Australia: Implications for policy and practice.Health information management : journal of the Health Information Management Association of Australia · 2025Article
- Digital determinants of sexual and reproductive health-workforce perspectives on digital and data literacies.Health promotion international · 2025Article
- Exploring the contextual assumptions, interventions and outcomes of digital advance care planning systems: A theory of change approach to understand implementation and evaluation.Palliative medicine · 2024Article
- Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study.Palliative medicine · 2024Article
- The Implementation of Federated Digital Identifiers in Health Care: Rapid Review.Journal of medical Internet research · 2024Review
- Knowledge of Australia's My Health Record and factors associated with opting out: Results from a national survey of the Australian general population and communities affected by HIV and sexually transmissible infections.PLOS digital health · 2023Article
- Engaging Stigmatised Communities in Australia with Digital Health Systems: Towards Data Justice in Public Health.Sexuality research & social policy : journal of NSRC : SR & SP · 2023Article
- The reliability and integrity of overall survival data based on follow-up records only and potential solutions to the challenges.The Lancet regional health. Western Pacific · 2023Review
- Digital Health Literacy as a Predictor of Awareness, Engagement, and Use of a National Web-Based Personal Health Record: Population-Based Survey Study.Journal of medical Internet research · 2022Article
- Sharing Government Health Data With the Private Sector: Community Attitudes Survey.Journal of medical Internet research · 2021Article
- Role of Individual Motivations and Privacy Concerns in the Adoption of German Electronic Patient Record Apps-A Mixed-Methods Study.International journal of environmental research and public health · 2021Article
- Understanding digital health ecosystem from Australian citizens' perspective: A scoping review.PloS one · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The Australian government's Australian Digital Health Agency is working towards its goal of enrolling every Australian in My Health Record, its national electronic health record system. This article reports findings from a qualitative project involving interviews and focus groups with Australian women about their use of digital health across the range of technologies available to them, including their attitudes to and experiences of My Health Record. A feminist new materialism perspective informed the project, working to surface the affordances, affective forces and relational connections that contributed to the opening up or closing off potential agential capacities when people come together with digitised systems such as My Health Record. These findings demonstrate that people's personal experiences and feelings, the actions of others such as the agencies responsible for system implementation and function, their healthcare providers and broader social, cultural, technological and political factors are important in shaping their knowledge, interest in and acceptance of an electronic health record system. Even among this group of participants, who were experienced and active in finding and engaging with health information online, uncertainty and a lack of awareness of and interest in My Health Record were evident among many. Affordances such as technical difficulties were major barriers to enrolling and using the system successfully. No participants had yet found any benefit or use for it. Affective forces such as lack of trust and faith in the Australian government's general technological expertise and concerns about data privacy and security were also key in many participants' accounts.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.