SynthesisBMJ supportive & palliative care2020
Electronic palliative care coordination systems (EPaCCS): a systematic review.
Synthesis in BMJ supportive & palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Evaluating outcomes of advance care planning interventions for adults living with advanced illness and people close to them: A systematic meta-review.Palliative medicine · 2025Pooled it
- The effectiveness of out-of-hours palliative care telephone advice lines: A rapid systematic review.Palliative medicine · 2024Pooled it
- Transforming Health Data to Actionable Information: Recent Progress and Future Opportunities in Health Information Exchange.Yearbook of medical informatics · 2022Pooled it
- New technology must support, not restrict humaneness: a qualitative interview study on the potential influences of a new digital system on specialist palliative home care.BMC palliative care · 2026Article
- Good care for older people at the end of life: Shared responsibilities, flexible boundaries.Future healthcare journal · 2026Article
- Communication during out-of-hours primary care contacts for people with a terminal illness: a scoping review.BMJ open · 2026Article
- Article
- From inferring preferences to enabling choice: potentials of digital tools to improve substitute decision-making.Frontiers in digital health · 2026Article
- Mapping study on AI-based technologies in palliative care - a scoping study.BMC palliative care · 2025Article
- Systemic Strategies to Prevent Nonbeneficial Treatments Near the End of Life.JAMA network open · 2025Article
- Optimising digital advance care planning implementation in palliative and end-of-life care: a multi-phase mixed-methods national research programme and recommendations.BMC medicine · 2025Article
- Exploring the contextual assumptions, interventions and outcomes of digital advance care planning systems: A theory of change approach to understand implementation and evaluation.Palliative medicine · 2024Article
- Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study.Journal of medical Internet research · 2024Article
- Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study.Palliative medicine · 2024Article
- Telephone advice lines for adults with advanced illness and their family carers: a qualitative analysis and novel practical framework.Palliative medicine · 2024Article
- Article
- Accuracy of clinical predictions of prognosis at the end-of-life: evidence from routinely collected data in urgent care records.BMC palliative care · 2023Observational
- Unwarranted variations in end-of-life care and the impact of using an electronic coordination system.Research in health services & regions · 2023Article
- Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved].AMRC open research · 2023Article
- Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-stage design.Palliative medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
objectivesTo systematically search, evaluate and report the state of the science of electronic palliative care coordination systems (EPaCCS).
methodsWe searched CINAHL, MEDLINE, Embase, the Cochrane Library and grey literature for articles evaluating or discussing electronic systems to facilitate sharing of information about advance care plans. Two independent review authors screened full-text articles for inclusion, assessed quality and extracted data.
resultsIn total, 30 articles and reports were included. Of the 26 articles, 14 were 'expert opinion' articles (editorials, discussion papers or commentaries), 9 were observational studies (cross-sectional, retrospective cohort studies or service evaluations), 2 were qualitative studies and 1 a mixed-methods study. No study had an experimental design. Quantitative studies described the proportion of people with EPaCCS dying in their preferred place, and associations between EPaCCS use and hospital utilisation. Qualitative, mixed-methods studies and reports described the burden of inputting data and difficulties with IT systems as main challenges of implementing EPaCCS.
conclusionsMuch of the current scientific literature on EPaCCS comprises expert opinion, and there is an absence of experimental studies evaluating the impact of EPaCCS on end-of-life outcomes. Given the current drive for national roll-out of EPaCCS by 2020, it is essential that rigorous evaluation of EPaCCS is prioritised.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.