ArticlePloS one2019
"This is our life now. Our new normal": A qualitative study of the unmet needs of carers of stroke survivors.
Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Perceptions and Attitudes of Informal Caregivers of Stroke Patients Regarding theHealthcare (Basel, Switzerland) · 2025Article
- Psychometric evaluation of the mandarin version of the caregiver task inventory (CTI-45) for family caregivers of stroke survivors.BMC psychology · 2025Article
- Correlation Between the Quality of Life of Stroke Caregivers and the Readiness of Patients and Caregivers for Hospital Discharge.Patient preference and adherence · 2025Article
- Factors Influencing Recovery From Pediatric Stroke Based on Discussions From a UK-Based Online Stroke Community: Qualitative Thematic Study.Journal of medical Internet research · 2024Article
- Exploring the Types of Social Support Exchanged by Survivors of Pediatric Stroke and Their Families in an Online Peer Support Community: Qualitative Thematic Analysis.Journal of medical Internet research · 2024Article
- Palliative care needs of Jordanian women's experience of living with stroke: a descriptive phenomenological study.BMC palliative care · 2023Article
- Qualitative study exploring heterogeneity in caregiving experiences post-stroke in Singapore.BMJ open · 2023Article
- A scoping review on studies about the quality of life of informal caregivers of stroke survivors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Support system diversity among family caregivers of stroke survivors: a qualitative study exploring Asian perspectives.BMC geriatrics · 2021Article
- "It's like being on a roller coaster": the burden of caring for people with severe asthma.ERJ open research · 2021Article
- Development of the life change adaptation scale for family caregivers of individuals with acquired brain injury.PloS one · 2020Article
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Authors and funding
10 authors.
Funding
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Abstract
Many stroke survivors require care from informal carers such as family members and friends who may experience adverse impacts. This study aimed to qualitatively explore the unmet needs of carers of stroke survivors, and their preferences for interventions and support services. We conducted 24 semi-structured, qualitative interviews with carers of stroke survivors from the Hunter region, Australia. Inductive thematic analysis was used in the context of a needs-led framework to identify key themes of their unmet needs. Key unmet needs identified by carers of stroke survivors in this study centred on four main themes: (1) social relationships and support; (2) adequacy of information; (3) taking care of oneself; and (4) accessing appropriate services. Carers of stroke survivors desired the development of services which provide connectivity to information, training, education and community support; and inclusion in a community with social relationships and other carers of stroke survivors. Ongoing unmet needs often result in adverse health and quality of life outcomes for carers of stroke survivors. Co-designed programs and resources for carers, particularly relating to unmet needs in social, information, self-care and service access domains are needed.
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