ArticleJournal of the American Medical Informatics Association : JAMIA2019
Is research on patient portals attuned to health equity? A scoping review.
Article in Journal of the American Medical Informatics Association : JAMIA, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 58 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
58 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Women's experiences of using patient portals in healthcare settings: a rapid review.BMC women's health · 2024Pooled it
- A systematic review and meta-analysis of psychosocial interventions for immigrant and limited English proficient cancer patients.Psycho-oncology · 2023Pooled it
- Adult patient access to electronic health records.The Cochrane database of systematic reviews · 2021Pooled it
- The State of Evidence in Patient Portals: Umbrella Review.Journal of medical Internet research · 2020Pooled it
- Confronting complexity: toward equitable healthcare technology design and evaluation for socioeconomically marginalized patients.JAMIA open · 2026Article
- Identifying trajectories across care modalities before and after COVID-19 using sequence analysis.NPJ digital medicine · 2026Article
- Identifying Skill and Usability Barriers to Digital Health Tool Use Among Older Adult Patients in US Safety Net Clinics: Mixed Methods Study.JMIR human factors · 2026Article
- Trajectories of In-Person and Remote Care Utilization: A Sequence Analysis of Primary Care Modalities Pre- and Post-COVID-19.Research square · 2025Article
- Multidisciplinary Contributions and Research Trends in eHealth Scholarship (2000-2024): Bibliometric Analysis.Journal of medical Internet research · 2025Article
- Patient-Accessible Electronic Health Records and Information Practices in Mental Health Care Contexts: Scoping Review.Journal of medical Internet research · 2025Article
- Qualitative evaluation of the implementation and national roll-out of the NHS App in England.BMC medicine · 2025Article
- Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Designing an interoperable patient portal to augment an Advanced Nurse Practitioner service for Children with hydrocephalus.International journal of nursing studies advances · 2024Article
- Differences in Use of a Patient Portal Across Sociodemographic Groups: Observational Study of the NHS App in England.Journal of medical Internet research · 2024Observational
- Evaluating Expert-Layperson Agreement in Identifying Jargon Terms in Electronic Health Record Notes: Observational Study.Journal of medical Internet research · 2024Observational
- Experiences of Care, Racism, and Communication of Postpartum Black Women Readmitted After Delivery.O&G open · 2024Article
- Care partners and consumer health information technology: A framework to guide systems-level initiatives in support of digital health equity.Learning health systems · 2024Article
- The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents.Journal of participatory medicine · 2024Article
- From illness management to quality of life: rethinking consumer health informatics opportunities for progressive, potentially fatal illnesses.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Disparities in Patient Portal Use Among Adults With Chronic Conditions.JAMA network open · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveOur scoping review examined how research on patient portals addresses health equity. Questions guiding our review were: 1) What health equity concepts are addressed in patient portal research-both explicitly and implicitly? 2) What are the gaps? 3) Is the potential for ehealth-related health inequities explicitly acknowledged in studies on patient portals? 4) What novel approaches and interventions to reduce health inequities are tested in patient portal research? MATERIALS AND
methodsWe searched 4 databases. Search terms included "patient portal" in combination with a comprehensive list of health equity terms relevant in ehealth context. Authors independently reviewed the papers during initial screening and full-text review. We applied the eHealth Equity Framework to develop search terms and analyze the included studies.
resultsBased on eHealth Equity Framework categories, the main findings generated from 65 reviewed papers were governance structures, ehealth policies, and cultural and societal values may further inequities; social position of providers and patients introduces differential preferences in portal use; equitable portal implementation can be supported through diverse user-centered design; and intermediary strategies are typically recommended to encourage portal use across populations. DISCUSSION: The predominant focus on barriers in portal use may be inadvertently placing individual responsibility in addressing these barriers on patients already experiencing the greatest health disparities. This approach may mask the impact of the socio-technical-economic-political context on outcomes for different populations.
conclusionTo support equitable health outcomes related to patient portals we need to look beyond intermediary initiatives and develop equitable strategies across policy, practice, research, and implementation.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.