ArticlePediatric pulmonology2019
Pursuing parenthood with cystic fibrosis: Reproductive health and parenting concerns in individuals with cystic fibrosis.
Article in Pediatric pulmonology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 41 citations in OpenAlex.
- Parenting and Occupational Therapy: An Exploration of Global Practice.OTJR : occupation, participation and health · 2026Article
- Assessing the Need for Reproductive Genetic Counseling Among Adults with Cystic Fibrosis.Research square · 2026Article
- 'The Hero's journey': Narratives on the transition to motherhood with cystic fibrosis.British journal of health psychology · 2026Article
- What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis.Palliative medicine · 2026Review
- 'Nobody Has Ever Spoken to Me About PCD and Fertility Issues': Fertility Experiences of People With Primary Ciliary Dyskinesia and Their Family Caregivers.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Assessing Infertility Literacy and Knowledge Gaps Among Patients with Cystic Fibrosis.Urology research & practice · 2023Article
- Reproductive Counseling and Care in Cystic Fibrosis: A Multidisciplinary Approach for a New Therapeutic Era.Life (Basel, Switzerland) · 2023Review
- CF and male health: Sexual and reproductive health, hypogonadism, and fertility.Journal of clinical & translational endocrinology · 2022Article
- Family-building and parenting considerations for people with cystic fibrosis.Pediatric pulmonology · 2022Review
- Article
- Engaging Stakeholders in the Development of a Reproductive Goals Decision AID for Women with Cystic Fibrosis.Journal of patient experience · 2022Article
- Family planning, pregnancy and birth in women with lung conditions: a worldwide survey.ERJ open research · 2021Article
- Perspectives of people with cystic fibrosis considering parenthood surrounding preconception and prenatal genetic counseling and testing.Therapeutic advances in respiratory diseaseArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
backgroundAs life expectancy for cystic fibrosis (CF) has increased in recent decades, more individuals with CF are becoming parents. The objectives of this study were to describe the parenting and reproductive health concerns of individuals with CF and to identify the psychosocial and educational needs related to parenthood with CF.
methodsTwenty adults with CF, including parents and non-parents, participated in one-on-one, semi-structured interviews about reproductive health and parenting. Questions pertained to reproductive health knowledge, psychosocial adaptation to CF related to fertility and parenthood, parenting concerns in the context of CF, and psychosocial care needs. We performed thematic content analysis on interview transcripts and descriptive statistical analysis on participant demographics and health variables.
resultsA majority of participants (ten women and ten men, of whom half were parents) described their health as "stable" and "good/fair"; median FEV
conclusionsIndividuals with CF may not receive sufficient CF-related reproductive health education, and they have wide-ranging concerns about the intersecting roles of patient and parent. Results from this study can provide guidance for CF care providers to improve their understanding and response to the needs of individuals and families affected by CF.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.