ArticlePediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies2019
Parental Perceptions of Displayed Patient Data in a PICU: An Example of Unintentional Empowerment.
Article in Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
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Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Jointly held care documents in child and adolescent mental health services: a systematic review.Frontiers in child and adolescent psychiatry · 2026Pooled it
- Digital Interventions to Improve Health Literacy Among Parents of Children Aged 0 to 12 Years With a Health Condition: Systematic Review.Journal of medical Internet research · 2021Pooled it
- Facilitating Family-Centred Care at the Paediatric Intensive Care Unit: Implementation of a Co-Created Bedside Family Board.Nursing in critical care · 2026Article
- Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles.BMC medical ethics · 2025Article
- Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study.JMIR pediatrics and parenting · 2025Article
- Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review.Journal of medical Internet research · 2022Article
- Modified ABCDEF-Bundles for Critically Ill Pediatric Patients - What Could They Look Like?Frontiers in pediatrics · 2022Review
- Improving transparent team communication with the 'Glass Door' decal communication tool: a mixed methods analysis of family and staff perspectives.BMJ open quality · 2021Article
- Use and impact of an online community for hospital patients.Journal of the American Medical Informatics Association : JAMIA · 2020Article
- Designing Inpatient Portals to Support Patient Agency and Dynamic Hospital Experiences.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2020Article
- Institutional Experience with Investigation and Service for Acute and Post-Traumatic Stress in the Pediatric Intensive Care Unit.Missouri medicineArticle
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5 authors.
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Abstract
objectivesTo explore the perceptions of parents of pediatric patients in a PICU regarding real-time open electronic health record data displayed in patient rooms.
designCross-sectional qualitative interview study.
settingPICU in a large Midwestern tertiary-care children's hospital. SUBJECTS: Parents of patients in a PICU (n = 33). MEASUREMENTS AND MAIN
resultsQualitative data were collected through in-person semi-structured, individual, and small-group interviews. Data were collected from March 2016 to July 2016, with approval from the study hospital's institutional review board. Data were analyzed using inductive thematic analysis. Results included positive effects of accessing real-time open electronic health record data on family empowerment, situation awareness, potential error detection, understanding of medical data, and facilitating discussions during rounds. Concerns were reported regarding privacy of information as well as potential misinterpretation of displayed data. We identified several ways to improve this collaborative technology to make it more family-centered.
conclusionsThis study suggests that a new health information technology system providing continuous access to open electronic health record data may be an effective way to empower and engage parents in the PICU, but potential drawbacks were also noted. The results also provide insights into the collaborative use of health information technology in the PICU setting.
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