Evidence map›Paper›PMID 31048870›Full record

ArticlePloS one2019

Using mobile technology to engage sexual and gender minorities in clinical research.

Mitchell R Lunn, Matthew R Capriotti, Annesa Flentje, Kirsten Bibbins-Domingo, Mark J Pletcher, Antony J Triano, Chollada Sooksaman, Jeffrey Frazier, Juno Obedin-Maliver

Abstract readClinical Trial, Phase IMulticenter Study
In one paragraph

Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 48 papers.

0numbers the graph read from it
0cells of the map it votes in
48citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

48 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Observational
  5. Article
  6. Article
  7. Article
  8. Article
  9. Review
  10. Sexual Orientation and Gender Diversity Research Manuscript Writing Guide.Psychology of sexual orientation and gender diversity · 2024
    Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Review
  17. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Mitchell R LunnThe PRIDE Study/PRIDEnet, University of California, San Francisco, San Francisco, California, United States of America.ORCID 0000-0002-0068-0814
Matthew R CapriottiThe PRIDE Study/PRIDEnet, University of California, San Francisco, San Francisco, California, United States of America.
Annesa FlentjeThe PRIDE Study/PRIDEnet, University of California, San Francisco, San Francisco, California, United States of America.
Kirsten Bibbins-DomingoThe PRIDE Study/PRIDEnet, University of California, San Francisco, San Francisco, California, United States of America.
Mark J PletcherThe PRIDE Study/PRIDEnet, University of California, San Francisco, San Francisco, California, United States of America.
Antony J TrianoTHREAD Research, Tustin, California, United States of America.
Chollada SooksamanTHREAD Research, Tustin, California, United States of America.
Jeffrey FrazierTHREAD Research, Tustin, California, United States of America.
Juno Obedin-MaliverThe PRIDE Study/PRIDEnet, University of California, San Francisco, San Francisco, California, United States of America.ORCID 0000-0002-0945-2842

Funding

Academic Training Program in NephrologyT32DK007219 · NIDDK · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI HSU, CHI-YUAN · 1986 to 2022
$7.3M
UCSF-Kaiser Urological Epidemiology Research Career Development ProgramK12DK111028 · NIDDK · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI HUANG, ALISON · 2016 to 2025
$5.3M
Gene expression outcomes in interventions for substance using HIV+ minority menK23DA039800 · NIDA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI FLENTJE, ANNESA · 2015 to 2019
$1.0M
NIDDK NIH HHS K12 DK111028NIDDK NIH HHS T32 DK007219
6 · The paper itself

Abstract

introductionHistorical and current stigmatizing and discriminatory experiences drive sexual and gender minority (SGM) people away from health care and clinical research. Being medically underserved, they face numerous disparities that make them vulnerable to poor health outcomes. Effective methods to engage and recruit SGM people into clinical research studies are needed.

objectivesTo promote health equity and understand SGM health needs, we sought to design an online, national, longitudinal cohort study entitled The PRIDE (Population Research in Identity and Disparities for Equality) Study that enabled SGM people to safely participate, provide demographic and health data, and generate SGM health-related research ideas.

methodsWe developed an iPhone mobile application ("app") to engage and recruit SGM people to The PRIDE Study-Phase 1. Participants completed demographic and health surveys and joined in asynchronous discussions about SGM health-related topics important to them for future study.

resultsThe PRIDE Study-Phase 1 consented 18,099 participants. Of them, 16,394 provided data. More than 98% identified as a sexual minority, and more than 15% identified as a gender minority. The sample was diverse in terms of sexual orientation, gender identity, age, race, ethnicity, geographic location, education, and individual income. Participants completed 24,022 surveys, provided 3,544 health topics important to them, and cast 60,522 votes indicating their opinion of a particular health topic.

conclusionsWe developed an iPhone app that recruited SGM adults and collected demographic and health data for a new national online cohort study. Digital engagement features empowered participants to become committed stakeholders in the research development process. We believe this is the first time that a mobile app has been used to specifically engage and recruit large numbers of an underrepresented population for clinical research. Similar approaches may be successful, convenient, and cost-effective at engaging and recruiting other vulnerable populations into clinical research studies.

Indexed as

Gender IdentityMobile ApplicationsSexual and Gender MinoritiesAdolescentAdultAgedFemaleHumansLongitudinal StudiesMaleMiddle Aged

Identifiers

PMID31048870
PMCPMC6497300

What OpenQuestion holds

Textmetadata
LicenceCC0
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.