Evidence map›Paper›PMID 31044517›Full record

ReviewHealth expectations : an international journal of public participation in health care and health policy2019

How might patient involvement in healthcare quality improvement efforts work-A realist literature review.

Carolina Bergerum, Johan Thor, Karin Josefsson, Maria Wolmesjö

Abstract readReview
In one paragraph

Review in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
34citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

34 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Equitable Patient and Public Involvement Strategies for Scaling Health and Social Care Interventions: A Consensus Study Inspired by Delphi Methods.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  5. Article
  6. Article
  7. Patient Roles and Patient Knowledge in Learning Health Systems.The International journal of health planning and management · 2026
    Article
  8. Article
  9. Article
  10. Patient-Led Research to Develop a Training Programme for Restoring Musical Joy in Cochlear Implant Recipients: A Reflexive Process Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  11. Article
  12. Article
  13. A qualitative exploration of patient safety in a hospital setting in Spain: Policy and practice recommendations on patients' and companions' participation.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  14. Cancer survival stories: Perception, creation, and potential use case.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Refining a capability development framework for building successful consumer and staff partnerships in healthcare quality improvement: A coproduced eDelphi study.Health expectations : an international journal of public participation in health care and health policy · 2022
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Carolina BergerumFaculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.ORCID 0000-0003-1281-7918
Johan ThorSchool of Health and Welfare, Jönköping Academy for Improvement of Health and Welfare, Jönköping University, Jönköping, Sweden.ORCID 0000-0003-1814-4478
Karin JosefssonFaculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.ORCID 0000-0002-7117-9808
Maria WolmesjöFaculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.ORCID 0000-0002-8807-0876

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThis realist literature review, regarding active patient involvement in healthcare quality improvement (QI), seeks to identify possible mechanisms that contribute to success or failure. Furthermore, the paper outlines key considerations for organizing and supporting patient involvement in healthcare QI efforts.

methodsTwo literature searches were performed. Altogether, 1204 articles from a healthcare context were screened, focusing on improvement efforts that involve patients, healthcare professionals and/or managers and leaders. Among these, 107 articles fulfilled the chosen study selection criteria and were further analysed. Eighteen articles underwent a full realist review. In the realist synthesis, context-mechanism-outcome configurations were articulated as middle-range theories and organized thematically to generate a program theory on how active patient involvement in QI efforts might work.

resultsThe articles exhibited a diversity of patient involvement approaches at different levels of healthcare organizations. To be successful, organizations' support of QI efforts that actively involved patients tailored the QI efforts to their context to achieve the desired outcomes, and involved the relevant microsystem members. Furthermore, it promoted interaction and partnership within the microsystem, and supported the behavioural change that follows.

conclusionThis realist synthesis generates a program theory for active patient involvement in QI efforts; active patient involvement can be a tool (resource), if tailored for interaction and partnership (reasoning), that leads to behaviour change (outcome) within healthcare QI efforts. The theory explains essential resource and reasoning mechanisms, and outcomes that together form guidance for healthcare organizations when managing active patient involvement in QI efforts.

Indexed as

Patient ParticipationQuality ImprovementHumansQuality of Health Careclinical microsystemco-designco-productionhealthcare managementhealthcare organizationpatient involvementquality improvementrealist review

Identifiers

PMID31044517
PMCPMC6803394

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.