ArticleInternational journal of geriatric psychiatry2019
The relationship between perceived functional difficulties and the ability to live well with mild-to-moderate dementia: Findings from the IDEAL programme.
Article in International journal of geriatric psychiatry, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed, 54 citations in OpenAlex.
- 12-month trajectory and predictors of affect balance in nursing home residents living with dementia.Aging & mental health · 2022Trial
- Dietary intakes and biomarker patterns of folate, vitamin BClinical epigenetics · 2019Trial
- Cost-effectiveness of a community-based dementia support model: evidence from a real-world economic evaluation.Cost effectiveness and resource allocation : C/E · 2026Article
- Perceived rehabilitation needs of older people with dementia : A qualitative interview study.BMC geriatrics · 2025Article
- Updating the self-appraisal of one's cognitive performance with 7 days of repeated exposure: From test-naïve to experienced.Neuropsychology · 2025Article
- Healthcare Awareness Profile Interview: Development of a new evidence-based brief clinical tool to assess awareness in people with dementia.Neuropsychological rehabilitation · 2025Article
- Article
- Trajectories of cognitive and perceived functional decline in people with dementia: Findings from the IDEAL programme.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- The use of virtual reality as a perspective-taking manipulation to improve self-awareness in Alzheimer's disease.Frontiers in aging neuroscience · 2024Review
- Resilience in caregivers of people with mild-to-moderate dementia: findings from the IDEAL cohort.BMC geriatrics · 2023Article
- Development of the "living well" concept for older people with dementia.BMC geriatrics · 2023Review
- Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Dyadic influences on awareness of condition in people with dementia: findings from the IDEAL cohort.Frontiers in aging neuroscience · 2023Article
- Attitudes toward own aging and cognition among individuals living with and without dementia: findings from the IDEAL programme and the PROTECT study.BMC geriatrics · 2022Article
- The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective.Dementia (London, England) · 2022Article
- Development of a Psychological Intervention to Promote Meaningful Activity in People Living With Mild Dementia: An Intervention Mapping Approach.The Gerontologist · 2022Review
- Giving meaning to the scores of the Amsterdam instrumental activities of daily living questionnaire: a qualitative study.Health and quality of life outcomes · 2022Article
- Comorbidity patterns in institutionalized older adults affected by dementia.Alzheimer's & dementia (Amsterdam, Netherlands) · 2022Article
- What Are the Benefits of Pet Ownership and Care Among People With Mild-to-Moderate Dementia? Findings From the IDEAL programme.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2021Article
- Personalized Visual Mapping Assistive Technology to Improve Functional Ability in Persons With Dementia: Feasibility Cohort Study.JMIR aging · 2021Article
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 1 country.
Funding
Abstract
objectivesThe objectives of the study are to investigate how different levels of functional ability relate to quality of life, well-being, and satisfaction with life, conceptualised as reflecting capability to "live well" in people with dementia. METHODS/
designParticipants were 1496 people with mild-to-moderate dementia and 1188 informants who completed baseline assessments in the Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort study. Total self-rated and informant-rated scores on the Functional Activities Questionnaire were split into six ability levels to monitor how poorer functioning impacts the ability to live well. We also investigated the potential influence of sociodemographic and diagnostic variables, depression, cognition, and carer stress.
resultsMultivariate multiple regression models found that people with dementia who had the greatest functional impairment according to self-ratings and informant ratings had poorer living well scores than those with the least functional impairment. Sociodemographic and diagnostic factors and cognition had little impact on effect sizes. For self-ratings, depression attenuated the relationship between functional ability and living well, whereas carer stress attenuated informant ratings.
conclusionsPeople with dementia with the least functional impairments had greater capability to live well than those with the most functional impairment. Even subtle perceived difficulties in functional ability had a detrimental effect on the ability of people with dementia to live well. Depression in people with dementia and carer stress in informants influenced these associations, and therefore, these factors should be routinely included in future research studies and clinical assessments.
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