ArticleJournal of medical Internet research2019
"It's Not Just Technology, It's People": Constructing a Conceptual Model of Shared Health Informatics for Tracking in Chronic Illness Management.
Article in Journal of medical Internet research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Efficacy of Health Information Technology in Supporting Health Equity for Black and Hispanic Patients With Chronic Diseases: Systematic Review.Journal of medical Internet research · 2022Pooled it
- The efficacy of web or mobile-based interventions to alleviate emotional symptoms in people with advanced cancer: a systematic review and meta-analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Integrating Artificial Intelligence, Electronic Health Records, and Wearables for Predictive, Patient-Centered Decision Support in Healthcare.Healthcare (Basel, Switzerland) · 2025Article
- MigraineTracker: Examining Patient Experiences with Goal-Directed Self-Tracking for a Chronic Health Condition.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2024Article
- An Integrative Engagement Model of Digital Psychotherapy: Exploratory Focus Group Findings.JMIR formative research · 2023Article
- "They don't always think about that": Translational Needs in the Design of Personal Health Informatics Applications.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2021Article
- Self-Quantification Systems to Support Physical Activity: From Theory to Implementation Principles.International journal of environmental research and public health · 2020Review
- Adapting the stage-based model of personal informatics for low-resource communities in the context of type 2 diabetes.Journal of biomedical informatics · 2020Article
- Clinician Perspectives and Design Implications in Using Patient-Generated Health Data to Improve Mental Health Practices: Mixed Methods Study.JMIR formative research · 2020Article
- Experiences With Wearable Activity Data During Self-Care by Chronic Heart Patients: Qualitative Study.Journal of medical Internet research · 2020Article
- Perceptions About Technologies That Help Community-Dwelling Older Adults Remain at Home: Qualitative Study.Journal of medical Internet research · 2020Article
- Security and Privacy Risks Associated With Adult Patient Portal Accounts in US Hospitals.JAMA internal medicine · 2020Article
- Using Self-Study and Peer-to-Peer Support to Change "Sick" Care to "Health" Care: The Patient Perspective.Frontiers in digital health · 2020Article
- Provider Perspectives on Integrating Sensor-Captured Patient-Generated Data in Mental Health Care.Proceedings of the ACM on human-computer interaction · 2019Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundFor many people, tracking health indicators is central to managing a chronic illness. However, previous informatics research has largely viewed tracking as a solitary process that lacks the characteristics essential to tracking in support of chronic illness management.
objectiveTo inform development of effective technologies that aid tracking of health indicators to support chronic illness management, this study aimed to construct a health informatics model that accurately describes the work and social context of that tracking work.
methodsAs part of a larger project, we conducted semistructured interviews with 40 adults concerning their chronic illness management practices, including tracking and communication. We also assembled transcripts of 30 publicly available videos of 24 adults discussing tracking processes for managing their own chronic illness. We used qualitative methods to analyze interviews and video transcripts through the lens of ongoing personal and health informatics research.
resultsWe have described the people and work involved in tracking in support of chronic illness management and contributed a Conceptual Model of Shared Health Informatics (CoMSHI). Specifically, we identified the need for a health informatics model that (1) incorporates the ongoing nature of tracking work and (2) represents the social dimension of tracking for illness management. Our model depicts communication, information, collection, integration, reflection, and action work in the social context of the person with chronic illness, informal carers, health care providers, and community members.
conclusionsThe resulting CoMSHI yields a more detailed and nuanced viewpoint of tracking in support of chronic illness management and can inform technology design to improve tracking tools to support people in more confident and capable chronic illness management.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.