ArticleHealth expectations : an international journal of public participation in health care and health policy2019
Supporting self-management after traumatic brain injury: Codesign and evaluation of a new intervention across a trauma pathway.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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The trial behind it
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Who cites it
14 citing papers in PubMed, 34 citations in OpenAlex.
- TRAK MSK: a randomised external feasibility trial and process evaluation of a digital physiotherapy supported self-management programme for people with musculoskeletal pain.BMC musculoskeletal disorders · 2026Trial
- Personalisation at the Core of Success: Process Evaluation of the LISTEN Randomised Controlled Trial Evaluating a Personalised Self-Management Support Intervention for People Living With Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2025Trial
- Pilot trial of The Living Well Toolkit: qualitative analysis and implications for refinement and future implementation.BMC health services research · 2020Trial
- Article
- Understanding supported self-management for people living with a lower-grade glioma: Implementation considerations through the lens of normalisation process theory.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Using co-design methods to develop new personalised support for people living with Long Covid: The 'LISTEN' intervention.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Reclaiming Agency in Care Decisions and Barriers From the Perspectives of Individuals With Acquired Brain Injury and Their Family Members.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Occupational therapy practice to support executive function impairment after acquired brain injury: A UK clinical survey.The British journal of occupational therapy · 2024Article
- Article
- Protocol for a hybrid II study exploring the feasibility of delivering, evaluating, and implementing a self-management programme for people with neuromuscular diseases at a specialist neuromuscular centre.Pilot and feasibility studies · 2023Article
- Embedding the living well toolkit into service delivery - A complex process.PEC innovation · 2022Article
- Co-designing personalised self-management support for people living with long Covid: The LISTEN protocol.PloS one · 2022Article
- Supporting self-management after traumatic brain injury: Codesign and evaluation of a new intervention across a trauma pathway.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- Implementing an integrated approach to self-management support in an acute major trauma therapy team: an improvement project.BMJ open quality · 2019Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundSupported self-management (SSM) is a recognized approach for people with long-term conditions but, despite the prevalence of unmet needs, little is known about its role for people with traumatic brain injury (TBI).
objectivesTo codesign an SSM intervention with people with TBI and evaluate feasibility of implementation through multidisciplinary staff across a trauma pathway. SETTING AND
participantsPeople who had previously been admitted to a Major Trauma Centre following TBI and family members participated in a series of codesign activities. Staff attended SSM workshops and used the intervention with patients in acute and rehabilitation settings.
methodsWe used Normalization Process Theory constructs to guide and interpret implementation. Knowledge, beliefs and confidence of staff in SSM were assessed through pre- and post-training questionnaires, and staff, patients' and families' experiences were explored through semi-structured interviews. Qualitative data were analysed thematically, and clinical measures were mapped against a matched sample.
resultsCodesigned resources were created and used within an SSM approach for which 110 staff participated in training. Evaluation demonstrated significant differences in staff SSM confidence and skills, following training. Qualitative evaluation revealed adoption by staff, and patients' and families' experiences of using the resources. Challenges included reaching staff across complex pathways to achieve collective implementation.
conclusionThis is the first project to demonstrate feasibility of SSM for people after TBI starting in an acute trauma setting. Through an open approach to codesign with a marginalized group, the SSM resources were valued by them and held meaning and relevance for staff.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.