Evidence map›Paper›PMID 31030731›Full record

ArticleArchives of physical medicine and rehabilitation2019

Challenges to the Standardization of Trauma Data Collection in Burn, Traumatic Brain Injury, Spinal Cord Injury, and Other Trauma Populations: A Call for Common Data Elements for Acute and Longitudinal Trauma Databases.

Laura C Simko, Liang Chen, Dagmar Amtmann, Nicole Gibran, David Herndon, Karen Kowalske, A Cate Miller, Eileen Bulger, Ryan Friedman, Audrey Wolfe and 8 more

Abstract read
In one paragraph

Article in Archives of physical medicine and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Article
  2. Article
  3. A review on the utility of sensitivity analysis in trauma research: Methods and challenges from recent trauma studies.European journal of trauma and emergency surgery : official publication of the European Trauma Society · 2025
    Review
  4. Article
  5. Article
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  8. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

Laura C SimkoSpaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA.
Liang ChenMassachusetts General Hospital, Shriners Hospitals for Children-Boston, Harvard Medical School, Boston, MA.
Dagmar AmtmannUniversity of Washington, Seattle, WA.
Nicole GibranHarborview Medical Center, University of Washington, Seattle, WA.
David HerndonUniversity of Texas Medical Branch, Shriners Hospitals for Children-Galveston, Galveston, TX.
Karen KowalskeUniversity of Texas Southwestern Medical Center, Dallas, TX.
A Cate MillerThe National Institute on Disability, Independent Living, and Rehabilitation Research, Administration for Community Living, Department of Health and Human Services, Washington, DC.
Eileen BulgerHarborview Medical Center, University of Washington, Seattle, WA.
Ryan FriedmanSpaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA.
Audrey WolfeSpaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA.
Kevin K ChungUniformed Services University of the Health Sciences, Brooke Army Medical Center, Houston, TX.
Michael MosierThe Oregon Clinic, Portland, OR.
James JengMt. Sinai Beth Israel, Mt. Sinai School of Medicine, New York, NY.
Joseph GiacinoSpaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA.
Ross ZafonteSpaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA.
Lewis E KazisBoston University School of Public Health, Boston, MA.
Jeffrey C SchneiderSpaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA.
Colleen M RyanMassachusetts General Hospital, Shriners Hospitals for Children-Boston, Harvard Medical School, Boston, MA. Electronic address: cryan@mgh.harvard.edu.

Funding

ACL HHS 90DP0035ACL HHS 90DP0055ACL HHS 90DPBU0001
6 · The paper itself

Abstract

objectiveCommon data elements (CDEs) promote data sharing, standardization, and uniform data collection, which facilitate meta-analyses and comparisons of studies. Currently, there is no set of CDEs for all trauma populations, but their creation would allow researchers to leverage existing databases to maximize research on trauma outcomes. The purpose of this study is to assess the extent of common data collection among 5 trauma databases.

designThe data dictionaries of 5 trauma databases were examined to determine the extent of common data collection. Databases included 2 acute care databases (American Burn Association's National Burn Data Standard and American College of Surgeons' National Trauma Data Standard) and 3 longitudinal trauma databases (Burn, Traumatic Brain Injury, Spinal Cord Injury Model System National Databases). Data elements and data values were compared across the databases. Quantitative and qualitative variations in the data were identified to highlight meaningful differences between datasets.

settingN/A.

participantsN/A.

interventionsN/A.

main outcome measuresN/A.

resultsOf the 30 data elements examined, 14 (47%) were present in all 5 databases. Another 9 (30%) elements were present in 4 of the 5 databases. The number of elements present in each database ranged from 23 (77%) to 26 (86%). There were inconsistencies in the data values across the databases. Twelve of the 14 data elements present in all 5 databases exhibited differences in data values.

conclusionsThis study demonstrates inconsistencies in the documentation of data elements in 5 common trauma databases. These discrepancies are a barrier to database harmonization and to maximizing the use of these databases through linking, pooling, and comparing data. A collaborative effort is required to develop a standardized set of elements for trauma research.

Indexed as

Brain Injuries, TraumaticBurnsCommon Data ElementsDatabases, FactualFeasibility StudiesHumansLong-Term CareSpinal Cord InjuriesTerminology as TopicTime FactorsTreatment OutcomeUnited StatesWounds and InjuriesCommon data elementsDatabaseRehabilitationRehabilitation research

Identifiers

PMID31030731
PMCPMC9140315

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.