ArticleBMC medicine2019
Ethical challenges in global health-related stigma research.
Article in BMC medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- COSMIN systematic review of stigma measurement in smoking, COPD, and lung cancer: content analysis, language audit, and psychometrics.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2026Pooled it
- Consenting practices to enhance comprehension in research involving individuals with schizophrenia and bipolar affective disorder in Uganda: a qualitative inquiry.BMC psychology · 2026Article
- Implications of COVID-19 Restrictions on the Ethics and Methods of a Multi-Site Study on Alcohol and Other Drug (AOD) Use Treatment among Men in South Africa.Journal of empirical research on human research ethics : JERHRE · 2026Article
- Ethical challenges researchers encounter during the informed consent processes for research involving people with schizophrenia and bipolar affective disorder: a qualitative assessment.BMC medical ethics · 2026Article
- Understanding Unrest: Conspiracy Belief and Violent Radicalization Patterns in Young People During the COVID-19 Pandemic in the Netherlands.European journal on criminal policy and research · 2026Article
- Consulting people who use cannabis to plan a regulatory trial on non-medical cannabis sales in pharmacies.Research involvement and engagement · 2025Article
- Research participants' perception of ethical issues in stroke genomics and neurobiobanking research in Africa.PloS one · 2025Article
- Destigmatizing Palliative Care among Young Adults-A Theoretical Intervention Mapping Approach.Healthcare (Basel, Switzerland) · 2024Article
- How to design equitable digital health tools: A narrative review of design tactics, case studies, and opportunities.PLOS digital health · 2024Review
- Mental health and quality of life following breast cancer diagnosis in patients seen at a tertiary care hospital in Nairobi, Kenya: A qualitative study.Global mental health (Cambridge, England) · 2024Article
- Article
- Advancing Population Health Through Open Environmental Data Platforms.Current topics in behavioral neurosciences · 2024Review
- Accreditation of research ethics committees in Paraguay: An ethical imperative.Revista de bioetica y derecho & perspectivas bioeticas · 2023Article
- Developing a Digital Medication Adherence Intervention for and With Patients With Asthma and Low Health Literacy: Protocol for a Participatory Design Approach.JMIR formative research · 2023Article
- Toward a multi-level strategy to reduce stigma in global mental health: overview protocol of the Indigo Partnership to develop and test interventions in low- and middle-income countries.International journal of mental health systems · 2023Article
- Better recognition for research participants: what society should learn from covid-19.BMJ (Clinical research ed.) · 2023Article
- Transforming psychology education to include global mental health.Global mental health (Cambridge, England) · 2023Review
- Reporting and conducting patient journey mapping research in healthcare: A scoping review.Journal of advanced nursing · 2023Article
- Ethical challenges of cord blood banks: a scoping review.Journal of medicine and life · 2022Article
- Effect of a Virtual Reality Contact-Based Educational Intervention on the Public Stigma of Depression: Randomized Controlled Pilot Study.JMIR formative research · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundIt is critically important to conduct research on stigmatized conditions, to include marginalized groups that experience stigma, and to develop interventions to reduce stigma. However, such research is ethically challenging. Though superficial reference is frequently made to these widely acknowledged challenges, few publications have focused on ethical issues in research on stigmatized groups or conditions. In fact, a brief literature review found only two such publications. MAIN TEXT: At a recent Science of Stigma Reduction workshop comprising 60 stigma researchers from the USA and low and middle-income countries, the need for more robust and critical discussion of the ethics of the research was highlighted. In this paper we describe, illustrate through cases, and critically examine key ethical challenges that are more likely to arise because a research study focuses on health-related stigma or involves stigmatized groups or conditions. We examine the ethics of this research from two perspectives. First, through the lens of overprotection, where we discuss how the perception of stigma can impede ethical research, disrespect research participants, and narrow the research questions. Second, through the lens of research risks, where we consider how research with stigmatized populations can unintentionally result in harms. Research-related harms to participants include potential breaches of confidentiality and the exacerbation of stigma. Potential harms also extend to third parties, including families and populations who may be affected by the dissemination of research results.
conclusionsResearch with stigmatized populations and on stigmatized conditions should not be impeded by unnecessary or inappropriate protective measures. Nevertheless, it may entail different and greater risks than other health research. Investigators and research ethics committees must be particularly attentive to these risks and how to manage them.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.