ArticleJournal of pain and symptom management2019
Changes Over Time in Good-Parent Beliefs Among Parents of Children With Serious Illness: A Two-Year Cohort Study.
Article in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Parental hope in paediatric palliative care: a systematic review of the ethical issues in evidence-based literature.BMC medical ethics · 2026Pooled it
- Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT.Pediatrics · 2021Trial
- Supporting parents' emotional and mental health in the antenatal consultation.Journal of perinatology : official journal of the California Perinatal Association · 2025Review
- Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit.Journal of palliative medicine · 2024Article
- Agreement and disagreement between child-caregiver symptom and function reports in pediatric oncology.Pediatric blood & cancer · 2024Article
- Navigating Stress in the Pediatric Intensive Care Unit Among Parents of Children with Severe Neurological Impairment.Journal of pain and symptom management · 2023Article
- Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers.Journal of palliative medicine · 2023Article
- "You just want someone to help": Outcomes that matter to parents when their child is treated for chronic pain.Paediatric & neonatal pain · 2023Article
- Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association.Circulation. Cardiovascular quality and outcomes · 2023Review
- Communicating With Families of Children With Severe Neurological Impairment.Journal of pain and symptom management · 2022Article
- Bereaved Parent Perspectives on the Benefits and Burdens of Technology Assistance among Children with Complex Chronic Conditions.Journal of palliative medicine · 2022Article
- Clinicians' Perspectives on the Functions of Communication in Pediatric Oncology.Journal of palliative medicine · 2021Article
- "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer.Pediatric blood & cancer · 2021Article
- Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology.JCO oncology practice · 2021Article
- Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making.Palliative medicine · 2021Article
- Honoring the Good Parent Intentions of Courageous Parents: A Thematic Summary from a US-Based National Survey.Children (Basel, Switzerland) · 2020Article
- Experiences of parents who give pharmacological treatment to children with functional constipation at home.Journal of advanced nursing · 2020Article
- Parental Attitudes toward Artificial Intelligence-Driven Precision Medicine Technologies in Pediatric Healthcare.Children (Basel, Switzerland) · 2020Article
- Communication in Pediatric Oncology: A Qualitative Study.Pediatrics · 2020Article
- "Good-Parent Beliefs": Research, Concept, and Clinical Practice.Pediatrics · 2020Review
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
contextParents of seriously ill children hold personal beliefs about what they should do to be good parents. How these beliefs change over time is unknown.
objectivesThe objectives of this study were to describe the pattern of Good-Parent Beliefs over time, and determine whether parents' hopeful patterns of thinking, affect, and perceived child's health are associated with changes in beliefs at 12 and 24 months.
methodsOur longitudinal sample included 124 parents of 100 children hospitalized with serious illness. We used latent transition models to classify parents into groups with similar Good-Parent Beliefs during the baseline and follow-up periods and modeled the change in good-parent beliefs over time as a function of covariates using generalized linear mixed models.
resultsTwo parent belief profiles emerged from the latent transition model: Loved ("Making sure my child feels loved," n = 61 at baseline) and Informed ("Making informed decisions," n = 63 at baseline). At 12 months, 21 parents (20.4%) had moved into the Loved group and no parents transitioned to the Informed group. By 24 months, eight parents transitioned to the Loved group and four to the Informed group (13.04%). Transition into the Loved group was associated with parents' baseline degree of hopeful thinking and positive perceptions of child's health at baseline.
conclusionSome parents change their parenting priorities over time. Hopeful patterns of thinking and perception of child health appear to predict change. Clinicians should regularly reevaluate Good-Parent Beliefs over time to promote priority-congruent dialogue.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.