Evidence map›Paper›PMID 31025956›Full record

ArticleJMIR research protocols2019

Supporting the Process of Help-Seeking by Caregivers of Functionally Dependent Older Persons Through Electronic Health: Protocol for a Multicenter Co-Design.

Karine Latulippe, Manon Guay, Sophie Éthier, Andrée Sévigny, Véronique Dubé, Véronique Provencher, Valérie Poulin, Anick Mc Giguere, Mélanie Tremblay, Maude Carignan and 1 more

Abstract read
In one paragraph

Article in JMIR research protocols, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Karine LatulippeDepartment of Teaching and Learning Studies, Laval University, Quebec, QC, Canada.ORCID http://orcid.org/0000-0001-7998-6498
Manon GuaySchool of Rehabilitation, University of Sherbrooke, Sherbrooke, QC, Canada.ORCID http://orcid.org/0000-0002-2219-9327
Sophie ÉthierSchool of Social Work and Criminology, Laval University, Quebec, QC, Canada.ORCID http://orcid.org/0000-0003-3310-6402
Andrée SévignySchool of Social Work and Criminology, Laval University, Quebec, QC, Canada.ORCID http://orcid.org/0000-0002-3187-6465
Véronique DubéFaculty of Nursing, University of Montreal, Montreal, QC, Canada.ORCID http://orcid.org/0000-0002-0602-0390
Véronique ProvencherSchool of Rehabilitation, University of Sherbrooke, Sherbrooke, QC, Canada.ORCID http://orcid.org/0000-0002-8211-7135
Valérie PoulinUniversité du Québec in Trois-Rivières, Trois-Rivières, QC, Canada.ORCID http://orcid.org/0000-0001-7376-5256
Anick Mc GiguereCenter of Excellence on Aging Quebec, Quebec, QC, Canada.ORCID http://orcid.org/0000-0001-9928-7395
Mélanie TremblayDepartment of Teaching and Learning Studies, Laval University, Quebec, QC, Canada.ORCID http://orcid.org/0000-0003-2176-5902
Maude CarignanCenter of Excellence on Aging Quebec, Quebec, QC, Canada.ORCID http://orcid.org/0000-0003-0399-4525
Dominique GirouxCenter of Excellence on Aging Quebec, Quebec, QC, Canada.ORCID http://orcid.org/0000-0002-3264-5319

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIt is often only when the initial signs of exhaustion appear that caregivers first may engage in help-seeking behavior, but it is difficult for them to know which is the most appropriate formal service in their situation. Electronic health (eHealth) can support caregivers in keeping the older person they are caring for at home, but few eHealth tools designed for supporting the process of help-seeking by caregivers of functionally impaired older persons have been developed using a co-design approach.

objectiveThis paper aims to describe the protocol of a project that tries to assist caregivers to target their needs and those of the older person they support early in their help-seeking process, and guide them effectively to the formal service most appropriate for their situation. This project aims to answer the following questions: (1) What type of tool can better support caregivers to identify their needs and those of the older person they are caring for and then refer them to an appropriate formal service? and (2) What information should be found in such a tool?

methodsThis study presents a description of the process of an ongoing multicenter research project based on a co-design approach, which includes 3 phases (1) identification of caregivers' needs in terms of tools to support their help-seeking behavior, (2) development of a tool, and (3) evaluation of its usability.

resultsThe project began in January 2016 with the ethics application for the 3 phases of the project. For phase 1, recruitment began in December 2016 and ended in September 2017. Phase 2 began in the spring of 2017 and ended in June 2018. All the co-design sessions have been completed. Phase 3 of the project will begin in September 2018.

conclusionsAlthough there are some challenges associated with this type of methodology, the methodology still remains relevant, as it involves future users in the development of a tool, which increases the chances that the tool will meet the users' needs. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/11634.

Indexed as

agedcaregiverseHealthhelp-seeking behavior, community-based participatory researchtelemedicine

Identifiers

PMID31025956
PMCPMC6658263

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.