ArticleCanadian family physician Medecin de famille canadien2019
What adults with intellectual and developmental disabilities say they need to access annual health examinations: System navigation support and person-centred care.
Article in Canadian family physician Medecin de famille canadien, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 19 citations in OpenAlex.
- Hospitalisation and mortality among privately insured individuals with COVID-19 in the United States: The role of intellectual disabilities and Neurogenetic disorders.Journal of intellectual disability research : JIDR · 2024Article
- Virtue Ethics among Physicians who serve Individuals with Chronic Spinal Cord Injury in Indonesia.Asian bioethics review · 2023Article
- Virtual health care for adult patients with intellectual and developmental disabilities: A scoping review.Disability and health journal · 2021Article
- Experiences of patients with a disability in receiving primary health care: Using experience-based design for quality improvement.Canadian family physician Medecin de famille canadien · 2021Article
- "The doctor will see you now": Direct support professionals' perspectives on supporting adults with intellectual and developmental disabilities accessing health care during COVID-19.Disability and health journal · 2021Article
- Evaluation of Health Care Disparities for Individuals with Intellectual and Developmental Disabilities in Ohio.Community mental health journal · 2021Article
- Postpartum Health Care Among Women With Intellectual and Developmental Disabilities.American journal of preventive medicine · 2020Article
- Article
- Aging that includes an intellectual and developmental disability: A time to flourish?Canadian family physician Medecin de famille canadien · 2019Article
- Are we making a difference in primary care for adults with intellectual and developmental disabilities?Revista panamericana de salud publica = Pan American journal of public health · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 4 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo gain an understanding of the support needs of adults with intellectual and developmental disabilities (IDD) when scheduling, traveling to, and attending annual health examinations (AHEs).
designQualitative study that is part of a large population-level intervention aiming to increase uptake of AHEs among adults with IDD.
settingOntario.
participantsA total of 8 men and 5 women with IDD took part in semistructured interviews about their personal experiences related to AHEs.
methodsThematic analysis was used to examine experiences relating to scheduling, traveling to, and attending AHEs. MAIN
findingsSupport emerged as the overarching theme. Support included assistance navigating the health care system (assistance scheduling AHEs, reminders to book AHEs, financial assistance, transportation) and person-centred care (respect of privacy and autonomy, communication style, kindness, compassion, rapport with physician, health advocacy, and collaboration). Barriers to this support were also identified (lack of rapport, perception of unfriendliness, perception that the physician is too busy to tend to needs, and perception that the physician did not want to perform AHEs).
conclusionFor adults with IDD, system navigation support and person-centred care were central to accessing AHEs. In collaboration with informal caregivers, physicians have an important role in reducing barriers to patients accessing this valuable preventive care opportunity. Physicians can fulfil some of the needs disclosed by adults with IDD related to attending AHEs by offering support for scheduling appointments, by linking patients with IDD to resources that facilitate appointment attendance, and by increasing consultation duration.
Indexed as
Identifiers
31023781PMC6501723W2941206061What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.