Evidence map›Paper›PMID 31022916›Full record

ReviewJournal of clinical medicine2019

Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go.

Cátia Caneiras, Cristina Jácome, Sagrario Mayoralas-Alises, José Ramon Calvo, João Almeida Fonseca, Joan Escarrabill, João Carlos Winck

Abstract readReview
In one paragraph

Review in Journal of clinical medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Observational
  4. Patient Experience in Pancreas-Kidney Transplantation-A Methodological Approach Towards Innovation in an Established Program.Transplant international : official journal of the European Society for Organ Transplantation · 2022
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Cátia CaneirasInstitute of Environmental Health (ISAMB), Faculty of Medicine, Universidade de Lisboa, 1649-028 Lisboa, Portugal. ccaneiras@gmail.com.ORCID 0000-0002-3735-8554
Cristina JácomeCINTESIS-Center for Health Technologies and Information Systems Research, Faculty of Medicine, University of Porto, 4200-450 Porto, Portugal. cjacome@med.up.pt.ORCID 0000-0002-1151-8791
Sagrario Mayoralas-AlisesService of Pneumology, Hospital Universitario Moncloa, 28008 Madrid, Spain. sarimayoralas@gmail.com.
José Ramon CalvoHealthcare Department, Praxair Spain, 28020 Madrid, Spain. jose_ramon_calvo@praxair.com.
João Almeida FonsecaCINTESIS-Center for Health Technologies and Information Systems Research, Faculty of Medicine, University of Porto, 4200-450 Porto, Portugal. fonseca.ja@gmail.com.
Joan EscarrabillHospital Clínic de Barcelona, 08036 Barcelona, Spain. ESCARRABILL@clinic.cat.
João Carlos WinckFaculty of Medicine, University of Porto, 4200-319 Porto, Portugal. jcwinck@mail.telepac.pt.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The increasing number of patients receiving home respiratory therapy (HRT) is imposing a major impact on routine clinical care and healthcare system sustainability. The current challenge is to continue to guarantee access to HRT while maintaining the quality of care. The patient experience is a cornerstone of high-quality healthcare and an emergent area of clinical research. This review approaches the assessment of the patient experience in the context of HRT while highlighting the European contribution to this body of knowledge. This review demonstrates that research in this area is still limited, with no example of a prescription model that incorporates the patient experience as an outcome and no specific patient-reported experience measures (PREMs) available. This work also shows that Europe is leading the research on HRT provision. The development of a specific PREM and the integration of PREMs into the assessment of prescription models should be clinical research priorities in the next several years.

Indexed as

healthcarehome mechanical ventilationLong-term oxygen therapypatient-reported experience measuresquality of caresustainability

Identifiers

PMID31022916
PMCPMC6518292

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.